The Nystagmus Champions of 2021


Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite literally, tireless supporters of the Nystagmus Network.This year they walked ran or swam 200km over 30 days. Everyone took part, even the dog!We like to … Continue reading The Nystagmus Champions of 2021

How amazing is Edwin?


I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of my life. Recently, as Chief of Staff of my state’s second largest agency I was responsible for leading the development of a comprehensive employee wellness … Continue reading How amazing is Edwin?

How amazing is Wyatt?


Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents were told that he would never ride a bike, play sports, or even read a book. Everything he would do would be a challenge for … Continue reading How amazing is Wyatt?

How amazing is Grayson?


I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was very sad because I was lonely and didn’t have any friends. I have now met lots of new friends and even learnt to write my … Continue reading How amazing is Grayson?

How amazing is Poppy?


My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love dancing at the Lynsey Allen school of ballet and I also love horse riding. I’m so nervous to be starting high school in September (lots … Continue reading How amazing is Poppy?

How amazing is Katrina?


Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have never let it hold me back. This is Katrina’s amazing nystagmus story My name is Katrina, I am 22 years old, I attended mainstream school … Continue reading How amazing is Katrina?

How amazing is Tim?


Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story I was born with Congenital Nystagmus. I’d probably describe my sight as middle of the range, but still not good enough to drive. After leaving … Continue reading How amazing is Tim?

How amazing is Doug?


Earlier this year, Doug ran the Royal Parks Half Marathon for the Nystagmus Network. He raised £200. Doug says: 13.1 miles. 25,000 steps, a step for every time someone has told me I need to have my glasses checked. This is Doug’s amazing nystagmus story I was born with congenital horizontal nystagmus and astigmatism, thought … Continue reading How amazing is Doug?

Georgie’s Captain Tom 100 challenge


Twelve year old Georgie will be baking 100 cookies in honour of the memory of Captain Sir Tom Moore this weekend. That’s her #CaptainTom100 challenge to raise funds for the Nystagmus Network. We’re so grateful for your support, Georgie. We know those cookies are going to be yummy! Please sponsor Georgie here Start your #CaptainTom100 … Continue reading Georgie’s Captain Tom 100 challenge

Leon’s Captain Tom 100 challenge


To honour the memory of Captain Sir Tom Moore and his amazing fundraising legacy, Leon will be running 100 kilometers over the three day weekend to raise money for the Nystagmus Network research fund. Thank you so much for your support, Leon and all the very best for your challenge. Please sponsor Leon here Start … Continue reading Leon’s Captain Tom 100 challenge