Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for … Continue reading Phoenix is a #NystagmusStar
Author: Sue Ricketts
Is it time to review partially sighted or blind certification?
GUEST POST: Founder of Visualise Training and Consultancy and Seeing Beyond the Eyes CET roadshow lead, Daniel Williams has retinitis pigmentosa. In this article, he asks if it is time … Continue reading Is it time to review partially sighted or blind certification?
Ryan is a #NystagmusStar
Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly … Continue reading Ryan is a #NystagmusStar
Harley is a #NystagmusStar
Harley may have nystagmus, but her inner strength and courage mean she can achieve anything. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support … Continue reading Harley is a #NystagmusStar
Tommy is a #NystagmusStar
No matter how difficult life gets for Tommy, he’s always happy. He has nystagmus and another medical condition, but he never lets life get him down. To nominate your #NystagmusStar … Continue reading Tommy is a #NystagmusStar
Sarah is a #NystagmusStar
Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated … Continue reading Sarah is a #NystagmusStar
E-cards from the Nystagmus Network
Missed the Christmas post? No time to write your cards and run to the post box? No problem! Thanks to dontsendmeacard.com you can send a Nystagmus Network e-card today! Click … Continue reading E-cards from the Nystagmus Network
Oscar is a #NystagmusStar
Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready … Continue reading Oscar is a #NystagmusStar
Lyla is a #NystagmusStar
Nystagmus hasn’t stopped Lyla doing anything! She has just learnt to walk and loves saying Hiya! Her Mum says: “She’s the most fearless child who never gives up and I … Continue reading Lyla is a #NystagmusStar
Would your child like a German pen friend?
Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?