It may not stop the wind and rain, but, if you play the Nystagmus Network Weather Lottery, you will feel a little bit warmer inside. For £1 per week you … Continue reading Join our Weather Lottery
Author: Sue Ricketts
Does size really matter? Making it as a small charity.
What Charity asked the Nystagmus Network for tips on how a small charity can make a big impact. 1.What encouraged you to start your charity? The Nystagmus Network was founded … Continue reading Does size really matter? Making it as a small charity.
Blind in Business event
“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 … Continue reading Blind in Business event
Digital Skills and Well-being event
Free digital skills, information and well-being event for families with visually impaired children Saturday 28th March 1.30-4pm Swansea University Health and Wellbeing Centre To book a place contact Sue Neale … Continue reading Digital Skills and Well-being event
East Sussex Parent Carer Forum – get involved
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
Julia’s musical adventures
A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
Our new Facebook groups
The Nystagmus Network has launched 3 brand new official Facebook groups this week to help members of the nystagmus community come together to share their experiences, their problems and their … Continue reading Our new Facebook groups
Thank you, Lynda
Our lovely knitting volunteer, Lynda has just delivered a new supply of Nystagmus Network mascots for our online shop. Each mascot represents a child who has nystagmus and wears a … Continue reading Thank you, Lynda
Volunteers needed
It’s thought that some types of nystagmus are caused by a genetic spelling mistake. Although nystagmus is not classified officially as a rare disease, we can all take part in … Continue reading Volunteers needed
Improving the infantile nystagmus test
Delegates at 100% Optical learned about progress on refining the way an eye movement disorder is identified in babies Professor Jon Erichsen from the University of Cardiff gave a presentation … Continue reading Improving the infantile nystagmus test