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Author: Sue Ricketts

Friday Fundraisers on Facebook


Every Friday on our Facebook page we celebrate the achievements of the week’s top fundraiser, feature the story of one of our upcoming fundraisers or signpost you to fabulous and … Continue reading Friday Fundraisers on Facebook

Posted on March 2, 2018February 21, 2018Author Sue RickettsCategories FundraisingTags Facebook, Friday Fundraiser

Sue visits Queen’s Medical Centre, Nottingham


Dr Kong Yien Chin, a clinical scientist working in the Evoked Potentials Clinic at Nottingham’s Queen’s Medical Centre, invited the Nystagmus Network’s Sue Ricketts to view the clinic, meet the … Continue reading Sue visits Queen’s Medical Centre, Nottingham

Posted on March 1, 2018Author Sue RickettsCategories researchTags diagnostics, ERG, Nottingham, QMC, VER

Thursday is research news day on Facebook


Every Thursday on our Facebook page we publish the latest news on nystagmus research or publish details of new nystagmus trials that you can take part in. We are currently … Continue reading Thursday is research news day on Facebook

Posted on March 1, 2018February 21, 2018Author Sue RickettsCategories researchTags nystagmus, nystagmus research, research participation opportunity, research trials

Every Wednesday is Nystagmus Awareness Day on Facebook


We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook

Posted on February 28, 2018February 21, 2018Author Sue RickettsCategories Charity highlights, Nystagmus Awareness DayTags awareness, nystagmus, wobbly wednesday

Nystagmus Awareness Day 2018


The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018

Posted on February 28, 2018February 27, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness Day, Wobbly WednesdayTags awareness, fundraising, nystagmus, wobbly wednesday

It’s Tuesday – that’s Nystagmus Networking day on Facebook!


We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!

Posted on February 27, 2018February 21, 2018Author Sue RickettsCategories Information and SupportTags Facebook, get together, meet up, networking, nystagmus

Monday Focus on Facebook


Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included … Continue reading Monday Focus on Facebook

Posted on February 26, 2018February 21, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags conversation, Facebook, Focus, living with nystagmus, surgery

Richard receives his OBE from Her Majesty the Queen


Chairman of the Nystagmus Network, Richard Wilson, formally received his OBE from Her Majesty The Queen at Windsor Castle on Friday. During his brief private conversation with Her Majesty, Richard … Continue reading Richard receives his OBE from Her Majesty the Queen

Posted on February 19, 2018Author Sue RickettsCategories Charity highlightsTags OBE

Could you do something extraordinary for nystagmus?


In 2018 we’re looking for people who want to do something amazing. We’ve got lots of opportunities lined up and we’re ready to give you masses of support to follow … Continue reading Could you do something extraordinary for nystagmus?

Posted on February 16, 2018Author Sue RickettsCategories FundraisingTags bucket list, challenge, nystagmus

Explaining nystagmus to a child


Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering … Continue reading Explaining nystagmus to a child

Posted on February 12, 2018Author Sue RickettsCategories Information and SupportTags children

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