Guest post: Harry’s back at school!


Over the summer holidays we followed Harry’s progress as he underwent the Anderson Kestenbaum procedure to address the head turn associated with his nullpoint. Today we hear from Harry’s Dad, Ian, how Harry is getting on, 4 weeks after his operation. Ian writes: “Harry’s eyes are now nothing but a slight irritation and, apart from … Continue reading Guest post: Harry’s back at school!

Guest post – Harry’s recovery from surgery continues


Harry and his family continue their post surgery journey. Ian writes: On day 7 after the op Harry is able to open his eyes for longer periods, the blurry vision is settling down and he is able to see much better. He is still having to have eye drops 4 times a day for the … Continue reading Guest post – Harry’s recovery from surgery continues

Guest post – one week after Harry’s null point surgery


Harry has undergone the Anderson Kestenbaum procedure this summer to address his marked head turn. His Dad, Ian, has asked us to share their experiences. A few days after the operation it was time for father and son to have a chat about how things had gone. Ian continues: On the Sunday post operation I had … Continue reading Guest post – one week after Harry’s null point surgery

Guest post – Harry’s null point surgery


Ian is sharing his thoughts and experiences as his son undergoes Anderson Kestenbaum surgery this summer to address the head turn associated with his null point. In this post he recalls the day of the surgery: We had to be there at 8.00am and Harry was in really good spirits. He went down to the … Continue reading Guest post – Harry’s null point surgery

Guest post – questions for Harry’s consultant


Harry and his parents had many, many questions before finally deciding to go ahead with null point surgery. Here are just some of the questions the family asked, with the answers they received from the surgical team: Is this a complicated procedure? Yes. Operating on eyes in general is complicated, but when 2 eyes are to … Continue reading Guest post – questions for Harry’s consultant

Guest post – Harry’s null point surgery decision


15 year old Harry has undergone the Anderson Kestenbaum procedure this summer. Parents often ask what null point surgery involves. Thorough consultation with the ophthalmologist and the surgical team are key.  Harry’s Dad, Ian, asked us to share his son’s experience. Ian, writes: My son, Harry is now aged 15 and was born with idiopathic nystagmus. … Continue reading Guest post – Harry’s null point surgery decision

Introducing Harry’s story


This is Harry. He’s 15 years old. He has nystagmus and, as you can probably tell from the photo, he also has a fairly marked head turn associated with his null point. This summer, Harry and his parents decided it was right for him to undergo surgery. Known commonly as ‘null point surgery’, because it seeks … Continue reading Introducing Harry’s story

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s services and our contact details so that patients with nystagmus can find us easily for information and support. Eye care and Health Professionals armed with … Continue reading Seeing Beyond The Eyes

2018 exams access arrangements feedback


Our friends at VIEW need your help. VIEW is a registered charity, which represents Qualified Teachers of Visually Impaired children and young people (QTVIs). It exists to help support the education, development and opportunities of children with vision impairment. They would like to receive feedback from schools and services on their experiences, both good and bad, of access arrangements … Continue reading 2018 exams access arrangements feedback