Guest posts – Nystagmus Network

Technology use in young people with impaired vision

Guest post from Saima Begum, University College London I am a student at University College London, studying at the Institute of Education and I am emailing to ask for your help with my Masters research project into Vision Impairment. This project aims to examine technology use in young people with vision impairment, and whether this … Continue reading Technology use in young people with impaired vision

Homeschooling and nystagmus

A Guest Post by author and nystagmus Mum, Nadine Neckles So the world has turned on its head and what we once considered normal and safe has morphed into anxiety inducing, mask wearing, groundhog day feeling ‘normality’. COVID-19 has changed a lot of what we do and how we do it, including how and where … Continue reading Homeschooling and nystagmus

Nystagmus in lockdown

In this Guest Post, Neil writes about his experiences of lockdown as a visually impaired person. I’m registered partially sighted and diagnosed with nystagmus and ocular albinism from birth. Both conditions will never improve, but fortunately will never get worse either, so I’m told. Basically, I’m extremely short sighted and on a good day (with … Continue reading Nystagmus in lockdown

Welcome boost for new mums and dads of young children with albinism

Guest post from Roselle Potts, Albinism Fellowship For more information, please contact Roselle Potts, email: [email protected] While the birth of a new baby is an occasion to celebrate, parents of children born with albinism often find that support for children with this rare genetic condition is hard to access. To mark International Albinism Awareness Day* … Continue reading Welcome boost for new mums and dads of young children with albinism

The impact of COVID-19 on visually impaired children

A guest post from Rosaleen Dempsey, RNIB Hi there I am from the children’s services in RNIB. Wonder if you would mind sharing a survey for families about the impact of the COVID-19 crisis on the education and development of children with VI. Survey has been designed by partners in the sight loss sector and … Continue reading The impact of COVID-19 on visually impaired children

East Sussex Parent Carer Forum – get involved

Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.

Julia’s musical adventures

A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell me if an approaching bus is a three-and-a-four-and-a-one or a two-and-a-nine, and I consider myself to be winning at life. My second child appears to … Continue reading Julia’s musical adventures

Is it time to review partially sighted or blind certification?

GUEST POST: Founder of Visualise Training and Consultancy and Seeing Beyond the Eyes CET roadshow lead, Daniel Williams has retinitis pigmentosa. In this article, he asks if it is time for a change when it comes to Certification of Vision Impairment (CVI). Whilst recognition that you have low vision is an advantage, when it becomes … Continue reading Is it time to review partially sighted or blind certification?

Smart Home Technology Increases Access and Independence for Blind and Partially Sighted people

GUEST POST: Daniel Williams, Founder of Visualise Training and Consultancy, looks at how smart home technology can be life changing for blind and partially sighted people As the world becomes increasingly digital, it brings welcome channels of communication and independence for people with visual impairments. The latest development is Self-Monitoring Analysis and Reporting Technology (SMART) … Continue reading Smart Home Technology Increases Access and Independence for Blind and Partially Sighted people