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Tag: Nystagmus Awareness Day

Claudia wears a white top, glasses and a floral crown.

Claudia’s nystagmus story


Thank you to everyone sharing their stories with us for Nystagmus Awareness Day 2023. You can share your story here This is Claudia’s story … Ours isn’t a complete journey, … Continue reading Claudia’s nystagmus story

Posted on June 25, 2023June 25, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Ella wears a pink dress and stands with someone wearing a large character costume.

Ella’s nystagmus story


We are delighted to share your stories of living with nystagmus to help raise awareness. You can share your story here This is Ella’s story … Ella was first diagnosed … Continue reading Ella’s nystagmus story

Posted on June 25, 2023June 25, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Robyn stands in a garden, wearing a Nystagmus Network T-shirt.

Robyn’s nystagmus story


All this week we’ve been sharing your nystagmus stories to help raise awareness of nystagmus for Nystagmus Awareness Day 2023. You can share your story here Robyn was first observed … Continue reading Robyn’s nystagmus story

Posted on June 22, 2023June 22, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Isabelle smiles for the camera.

Isabelle’s story


If you’d like to share your nystagmus story to help raise awareness we would love to hear from you. Share your story here This is Isabelle’s story … I was … Continue reading Isabelle’s story

Posted on June 21, 2023June 21, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Savannah wears a yellow polo shirt and blue-framed glasses.

Savannah’s nystagmus story


We are sharing your stories of nystagmus to help raise awareness of the condition. You can share your story here This is Savannah’s story Savannah’s Congenital Nystagmus was noticed by … Continue reading Savannah’s nystagmus story

Posted on June 21, 2023June 21, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Hazel is running a marathon. She is wearing a white T-shirt, black shorts and a bandana.

Hazel’s nystagmus story


Thank you to everyone who has shared their story for Nystagmus Awareness Day 2023 to help people understand the condition better. You can share your story here This is Hazel’s … Continue reading Hazel’s nystagmus story

Posted on June 21, 2023June 21, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Harshal Kubavat headshot

Harshal’s nystagmus story


This year for Nystagmus Awareness Day people are sharing their personal stories to help everyone understand what it’s really like You can share your story here This is Harshal’s story … Continue reading Harshal’s nystagmus story

Posted on June 21, 2023June 21, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Eliana is sitting on the floor cuddling a black Labrador dog.

Eliana’s story


This Nystagmus Awareness Day we’re inviting people who have nystagmus or care for someone who does to share their story. You can share your story here This is Eliana’s story … Continue reading Eliana’s story

Posted on June 16, 2023June 16, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Bryony smiles, wearing a summer dress and holding a glass of wine.

Bryony’s nystagmus story


For Nystagmus Awareness Day 2022 we’re giving you the opportunity to share your story to help others understand the impact of the condition. You can share your story here This … Continue reading Bryony’s nystagmus story

Posted on June 12, 2023June 12, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Peter Greenwood

Peter’s nystagmus story


People are sharing their nystagmus stories with us this Nystagmus Awareness Day so that everyone can understand what it’s like. You can share your nystagmus story here This is Peter’s … Continue reading Peter’s nystagmus story

Posted on June 6, 2023June 6, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network

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