Parent stories – Nystagmus Network

Nystagmus and the early years

The Nystagmus Network is proud to launch a new guide to nystagmus and the early years. Written for new parents and carers where a baby is newly diagnosed with nystagmus, … Continue reading Nystagmus and the early years

Mason is sitting on the floor of a sports hall holding a water bottle.

Mason’s nystagmus story

For Nystagmus Awareness Day 2023 we invited members of the nystagmus community to share their story to help people in the wider population to understand the condition. Thank you to … Continue reading Mason’s nystagmus story

Claudia wears a white top, glasses and a floral crown.

Claudia’s nystagmus story

Thank you to everyone sharing their stories with us for Nystagmus Awareness Day 2023. You can share your story here This is Claudia’s story … Ours isn’t a complete journey, … Continue reading Claudia’s nystagmus story

Ella wears a pink dress and stands with someone wearing a large character costume.

Ella’s nystagmus story

We are delighted to share your stories of living with nystagmus to help raise awareness. You can share your story here This is Ella’s story … Ella was first diagnosed … Continue reading Ella’s nystagmus story

Robyn stands in a garden, wearing a Nystagmus Network T-shirt.

Robyn’s nystagmus story

All this week we’ve been sharing your nystagmus stories to help raise awareness of nystagmus for Nystagmus Awareness Day 2023. You can share your story here Robyn was first observed … Continue reading Robyn’s nystagmus story

Savannah wears a yellow polo shirt and blue-framed glasses.

Savannah’s nystagmus story

We are sharing your stories of nystagmus to help raise awareness of the condition. You can share your story here This is Savannah’s story Savannah’s Congenital Nystagmus was noticed by … Continue reading Savannah’s nystagmus story

Harshal’s nystagmus story

This year for Nystagmus Awareness Day people are sharing their personal stories to help everyone understand what it’s really like You can share your story here This is Harshal’s story … Continue reading Harshal’s nystagmus story

Peter’s nystagmus story

People are sharing their nystagmus stories with us this Nystagmus Awareness Day so that everyone can understand what it’s like. You can share your nystagmus story here This is Peter’s … Continue reading Peter’s nystagmus story

Andy’s nystagmus story

We;re inviting everyone to share their nystagmus story in their preferred medium this Nystagmus Awareness Day. Andy has chosen to make a video. You can share your story here This … Continue reading Andy’s nystagmus story

The view of a woman's face from above. Someone's hands are applying eye makeup to the seated woman.

Sue’s nystagmus story

This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sue’s story … My nystagmus story begins in 1991 when … Continue reading Sue’s nystagmus story