Nystagmus news for eye care professionals


The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street and community practices. Read the newsletter and subscribe here

Children’s writing workshops this summer


Did you miss the children’s online writing workshop with fabulous children’s author, Helen Rutter? What a shame. That means you didn’t get to hear all about Helen’s inspiration behind her book ‘The Boy Who Made Everyone Laugh’ and you didn’t get to meet her dog, Billy Whizz! Never mind. There are two more workshops still … Continue reading Children’s writing workshops this summer

Harry’s story for Raindrops


This is Harry. Harry is 9 years old. He’s just written his story for the Raindrops story writing competition. It’s about Raindrops and what they make him think of. Well done, Harry. We look forward to reading yours and all the other stories in the fabulous Raindrops story book to be published later this year. … Continue reading Harry’s story for Raindrops

Looking forward to 20 June


We’re launching something BIG for Nystagmus Awareness Day 2021 But first, a question. Who’s your favourite children’s author? David Walliams? Eva Ibbotson? Onjali Rauf? Eoin Colfer? Malorie Blackman? Adam Blade? J K Rowling? Jacqueline Wilson? Please contact us with the name your child’s or your favourite children’s author THANK YOU

Wilson’s winning window


We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to have won a competition he didn’t even know he’d entered. Each evening Wilson sends home to his Mum a photograph of the view from his … Continue reading Wilson’s winning window

Nystagmus Awareness Day 20 June 20


Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we can still mark the day and raise awareness to ensure that the 1 in 1,000 adults and children living with nystagmus enjoys a greater understanding … Continue reading Nystagmus Awareness Day 20 June 20