How amazing is Edwin?


I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of my life. Recently, as Chief of Staff of my state’s second largest agency I was responsible for leading the development of a comprehensive employee wellness … Continue reading How amazing is Edwin?

How amazing is Wyatt?


Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents were told that he would never ride a bike, play sports, or even read a book. Everything he would do would be a challenge for … Continue reading How amazing is Wyatt?

How amazing is Grayson?


I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was very sad because I was lonely and didn’t have any friends. I have now met lots of new friends and even learnt to write my … Continue reading How amazing is Grayson?

How amazing is Poppy?


My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love dancing at the Lynsey Allen school of ballet and I also love horse riding. I’m so nervous to be starting high school in September (lots … Continue reading How amazing is Poppy?

Special edition scented candle raises funds for the Nystagmus Network


This lovely scented candle is specially created for the Nystagmus Network by Oli at No. 14 The Wick to celebrate Nystagmus Awareness Day 2021. The scent is Bergamot and Sage using a blend of essential and fragrance oils.  The oils have been chosen for the following aromatherapy attributes. BERGAMOT – Uplifting and refreshing. Reduces stress and anxiety SAGE … Continue reading Special edition scented candle raises funds for the Nystagmus Network

Nystagmus news for eye care professionals


The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street and community practices. Read the newsletter and subscribe here

Children’s writing workshops this summer


Did you miss the children’s online writing workshop with fabulous children’s author, Helen Rutter? What a shame. That means you didn’t get to hear all about Helen’s inspiration behind her book ‘The Boy Who Made Everyone Laugh’ and you didn’t get to meet her dog, Billy Whizz! Never mind. There are two more workshops still … Continue reading Children’s writing workshops this summer

Harry’s story for Raindrops


This is Harry. Harry is 9 years old. He’s just written his story for the Raindrops story writing competition. It’s about Raindrops and what they make him think of. Well done, Harry. We look forward to reading yours and all the other stories in the fabulous Raindrops story book to be published later this year. … Continue reading Harry’s story for Raindrops

Looking forward to 20 June


We’re launching something BIG for Nystagmus Awareness Day 2021 But first, a question. Who’s your favourite children’s author? David Walliams? Eva Ibbotson? Onjali Rauf? Eoin Colfer? Malorie Blackman? Adam Blade? J K Rowling? Jacqueline Wilson? Please contact us with the name your child’s or your favourite children’s author THANK YOU

Wilson’s winning window


We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to have won a competition he didn’t even know he’d entered. Each evening Wilson sends home to his Mum a photograph of the view from his … Continue reading Wilson’s winning window