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Category: Charity highlights

Congratulations Peter and Sam


Nystagmus Network trustees Peter Greenwood and Sam Jones completed the London Vitality 10k on Bank Holiday Monday and raised over £1,000 between them for the charity. Nystagmus Network Chairman, Richard … Continue reading Congratulations Peter and Sam

Posted on May 30, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags charity, London Vitality 10k, trustees

Sign up for the “Nystagmus in the Open” thunderclap!


At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take … Continue reading Sign up for the “Nystagmus in the Open” thunderclap!

Posted on May 1, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness DayTags Facebook, thunderclap, Twitter

Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk

Posted on April 18, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising, Nystagmus Awareness DayTags awareness, Big Blind Walk, nystagmus, nystagmus in the open, research

Join the crowds to cheer on Julian as he begins his Big Blind Walk


If you can join Julian for just one of the 1,000 miles he plans to walk for sight research, or stand at the side of the road as he passes … Continue reading Join the crowds to cheer on Julian as he begins his Big Blind Walk

Posted on April 4, 2018Author Sue RickettsCategories Charity highlights, EventsTags Big Blind Walk

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC

Posted on March 27, 2018April 3, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising

The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the … Continue reading The Outspan Rebels VI ski team

Posted on March 21, 2018Author Sue RickettsCategories Charity highlightsTags Outspan Rebels VI ski team, skiing
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Have you signed up for Gift Aid?


Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription we can claim an additional 25p back from … Continue reading Have you signed up for Gift Aid?

Posted on March 19, 2018September 3, 2018Author Sue RickettsCategories Charity highlightsTags Gift Aid

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same … Continue reading Open Day 2018 – booking open soon

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags membership

David Katz – our special guest speaker at Open Day 2018


We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David … Continue reading David Katz – our special guest speaker at Open Day 2018

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags David Katz, Pyeongchang, Through my Lenses, Winter Paralympics

Marsha de Cordova MP – our Open Day keynote speaker


We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags Marsha de Cordova, nystagmus, Open Day

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