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Category: Charity highlights

Nystagmus in the open and the Big Blind Walk


On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs … Continue reading Nystagmus in the open and the Big Blind Walk

Posted on April 18, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising, Nystagmus Awareness DayTags awareness, Big Blind Walk, nystagmus, nystagmus in the open, research

Join the crowds to cheer on Julian as he begins his Big Blind Walk


If you can join Julian for just one of the 1,000 miles he plans to walk for sight research, or stand at the side of the road as he passes … Continue reading Join the crowds to cheer on Julian as he begins his Big Blind Walk

Posted on April 4, 2018Author Sue RickettsCategories Charity highlights, EventsTags Big Blind Walk

Thank you to Mike and Studley Wood GC


Nystagmus Network trustee and golfing enthusiast, Peter Greenwood, traveled to Studley Wood Golf Club in Oxfordshire earlier this week to receive, on behalf of the charity, a cheque for £4,300. … Continue reading Thank you to Mike and Studley Wood GC

Posted on March 27, 2018April 3, 2018Author Sue RickettsCategories Charity highlights, Events, Fundraising

The Outspan Rebels VI ski team


Jamie and Josh Fuller are well known in the nystagmus community as the father and son team who delivered an inspirational presentation at Open Day last September. Jamie organised the … Continue reading The Outspan Rebels VI ski team

Posted on March 21, 2018Author Sue RickettsCategories Charity highlightsTags Outspan Rebels VI ski team, skiing
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Have you signed up for Gift Aid?


Did you know that for every pound you donate to the Nystagmus Network and for every pound of your annual membership subscription we can claim an additional 25p back from … Continue reading Have you signed up for Gift Aid?

Posted on March 19, 2018September 3, 2018Author Sue RickettsCategories Charity highlightsTags Gift Aid

Open Day 2018 – booking open soon


We are just finalising details of our annual Open Day 2018. We shall once again be in central Birmingham. The date is Saturday, 29 September. The venue is the same … Continue reading Open Day 2018 – booking open soon

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags membership

David Katz – our special guest speaker at Open Day 2018


We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David … Continue reading David Katz – our special guest speaker at Open Day 2018

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags David Katz, Pyeongchang, Through my Lenses, Winter Paralympics

Marsha de Cordova MP – our Open Day keynote speaker


We are delighted to announce that we shall be joined on Open Day this year by Shadow Minister for Disabilities, Marsha de Cordova. Marsha has nystagmus and is severely sight … Continue reading Marsha de Cordova MP – our Open Day keynote speaker

Posted on March 8, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags Marsha de Cordova, nystagmus, Open Day

Every Wednesday is Nystagmus Awareness Day on Facebook


We started national and international Nystagmus Awareness Day, also known as Wobbly Wednesday, back in 2013. But every Wednesday is awareness day on our Facebook page. This means you can … Continue reading Every Wednesday is Nystagmus Awareness Day on Facebook

Posted on February 28, 2018February 21, 2018Author Sue RickettsCategories Charity highlights, Nystagmus Awareness DayTags awareness, nystagmus, wobbly wednesday

Nystagmus Awareness Day 2018


The Nystagmus Network is delighted to post some exciting news. In 2018 we are declaring 20 June the new permanent date for Nystagmus Awareness Day. Since 2013, we have celebrated … Continue reading Nystagmus Awareness Day 2018

Posted on February 28, 2018February 27, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness Day, Wobbly WednesdayTags awareness, fundraising, nystagmus, wobbly wednesday

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