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Category: Charity highlights

rebecca presents at the Nystagmus Network Open Day

Nystagmus research update from Leicester


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each … Continue reading Nystagmus research update from Leicester

Posted on October 5, 2017January 18, 2018Author Sue RickettsCategories Charity highlights, researchTags nystagmus research
Jon Erichsen speaks with delegates at a Nystagmus Network Open Day event.

Nystagmus research update from Cardiff


The Nystagmus Network was privileged and proud to be joined at Open Day 2017 on 30 September by representatives from the 6 UK centres of excellence in nystagmus research. Each … Continue reading Nystagmus research update from Cardiff

Posted on October 5, 2017January 18, 2018Author Sue RickettsCategories Charity highlights, researchTags nystagmus research, research participation opportunity

World Film Première – Through my Lenses


The Nystagmus Network was proud to be granted permission to hold the first public screening anywhere in the world of a brand new short film about nystagmus at our 2017 … Continue reading World Film Première – Through my Lenses

Posted on October 5, 2017January 18, 2018Author Sue RickettsCategories Charity highlightsTags David Katz, Film Premiere, nystagmus, photography, Through my Lenses

Nystagmus Network Research Strategy 2017-19


One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with … Continue reading Nystagmus Network Research Strategy 2017-19

Posted on February 7, 2017Author Daniel LewiCategories Charity highlights, PostsTags research, research strategy, strategy

Merry Christmas everyone!


Merry Christmas everyone! It’s been a very busy year at the Nystagmus Network with lots taking place! Our Chairman Richard has a short Christmas message he would like to share … Continue reading Merry Christmas everyone!

Format VideoPosted on December 22, 2016January 5, 2017Author Daniel LewiCategories Charity highlights, PostsTags chairman, christmas, nystagmus

Steve McKay announcement


It is with great sadness that we announce the sudden and unexpected death of Trustee Steve McKay from Newton Abbot in Devon.  Steve suffered a tragic road accident on Thursday … Continue reading Steve McKay announcement

Format VideoPosted on December 16, 2016Author Daniel LewiCategories Charity highlights, PostsTags nystagmus, nystagmus network, steve mckay

An overview of the The UK Eye Genetics Group Conference 2016


This weeks video blog features Dan giving an overview of the recent UK Eye Genetics Group Conference which was held on the 25th November. The Nystagmus Network was a sponsor … Continue reading An overview of the The UK Eye Genetics Group Conference 2016

Format VideoPosted on December 1, 2016December 7, 2016Author Daniel LewiCategories Charity highlights, PostsTags conference, nystagmus, video blog

Peterborough Community Radio interview


This week the video blog at the Nystagmus Network features our very own Sue! The video is her interview with Peterborough Community Radio which is hosted by one of our … Continue reading Peterborough Community Radio interview

Posted on November 17, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, Parent stories, PostsTags nystagmus, wobbly wednesday

Wobbly Wednesday – show your support!


Our video this week focuses on Wobbly Wednesday and why your support is so important! It helps us raise awareness of nystagmus and make it the topic of discussion for … Continue reading Wobbly Wednesday – show your support!

Posted on October 13, 2016November 2, 2016Author Daniel LewiCategories Charity highlights, Fundraising, Living with nystagmus, PostsTags nystagmus, wobbly wednesday

Meet our new Nystagmus Network volunteers!


Today we are excited to officially announce our new volunteers at the Nystagmus Network! Earlier this year we started a recruitment drive to find people who were passionate and committed … Continue reading Meet our new Nystagmus Network volunteers!

Posted on September 8, 2016September 12, 2016Author Daniel LewiCategories Charity highlights, volunteerTags nystagmus, volunteer

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