Two new nystagmus research projects funded


Fight for Sight and Nystagmus Network are funding research into the impact of glare in infantile nystagmus and albinism in the hope of improving outcomes for people with the condition. People with nystagmus often experience glare, but until now this has not been researched thoroughly. The team at University of Leicester, led by Dr Frank … Continue reading Two new nystagmus research projects funded

Nystagmus research grant funding open for applications


The next round of small grant awards for nystagmus research is now open for application. The grant, funded jointly by Fight for Sight and the Nystagmus Network is worth up to £15,000. The Fight for Sight / Nystagmus Network Small Grant Award One award to support clinical research to address visual impairment associated with nystagmus, focusing on … Continue reading Nystagmus research grant funding open for applications

Georgie’s Captain Tom 100 challenge


Twelve year old Georgie will be baking 100 cookies in honour of the memory of Captain Sir Tom Moore this weekend. That’s her #CaptainTom100 challenge to raise funds for the Nystagmus Network. We’re so grateful for your support, Georgie. We know those cookies are going to be yummy! Please sponsor Georgie here Start your #CaptainTom100 … Continue reading Georgie’s Captain Tom 100 challenge

Leon’s Captain Tom 100 challenge


To honour the memory of Captain Sir Tom Moore and his amazing fundraising legacy, Leon will be running 100 kilometers over the three day weekend to raise money for the Nystagmus Network research fund. Thank you so much for your support, Leon and all the very best for your challenge. Please sponsor Leon here Start … Continue reading Leon’s Captain Tom 100 challenge

Congratulations, Dr Thomas


The Nystagmus Network is sending huge congratulations to the newly qualified Dr Nikita Thomas. Dr Thomas achieved her PhD this month. Nikita is well known to members of the Nystagmus Network for her engaging personality and confident presentations on her latest nystagmus research. On World Sight Day 2020, Nikita was named an Eye Health Hero … Continue reading Congratulations, Dr Thomas

Nystagmus does cause visual crowding – it’s official


It’s long been understood that people with nystagmus can struggle to pick out objects from an image or face in a crowd. That’s a phenomenon called visual crowding. But how does nystagmus cause this? Now Vijay, Taylor, nystagmus researcher at London’s Moorfields Eye Hospital and University College London has shown that the eye movements associated … Continue reading Nystagmus does cause visual crowding – it’s official

Living with Acquired Nystagmus and Oscillopsia?


The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. If you’re living with AN or oscillopsia and would like to join the group, you’d be most welcome.  At our recent virtual Open Day we were … Continue reading Living with Acquired Nystagmus and Oscillopsia?

New nystagmus research


We are excited to announce the start of a new research study into nystagmus The aim of the study is to gather evidence about people’s perceptions of nystagmus. The results will help shape further nystagmus research and awareness raising strategies, eventually contributing to better understanding of the condition and improved quality of life as a … Continue reading New nystagmus research

Do you have Acquired Nystagmus or Oscillopsia?


We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have either or both, we’d love to hear from you. You can help us develop a further research study into these complex, life changing conditions. We … Continue reading Do you have Acquired Nystagmus or Oscillopsia?

Nystagmus Network hosts UK research workshop


On Friday 2 October, the Nystagmus Network once again hosted the annual UK nystagmus research workshop. This is an opportunity for researchers, clinicians and academics to get together to share their work and plan greater collaboration. They are, after all, all working towards the same goal. The workshop took place via zoom. Nystagmus Network trustees … Continue reading Nystagmus Network hosts UK research workshop