Volunteers needed


It’s thought that some types of nystagmus are caused by a genetic spelling mistake. Although nystagmus is not classified officially as a rare disease, we can all take part in genetic research to help researchers find out more. The NIHR BioResource – Rare Diseases has been established to identify genetic causes of rare diseases, improve … Continue reading Volunteers needed

Nystagmus researchers need your help


Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given information, from diagnosis to treatments and beyond. They are now interested in studying public perceptions of nystagmus and are developing a similar questionnaire for both … Continue reading Nystagmus researchers need your help

Join us at the Manchester meet up


The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children with nystagmus and anyone supporting someone with nystagmus are all welcome to come along. The meeting is hosted by Nystagmus Network trustee, Marie Turnbull (pictured). … Continue reading Join us at the Manchester meet up

A survey on glaucoma and nystagmus


You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today. “The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey that aims to further our understanding on the number of people with nystagmus … Continue reading A survey on glaucoma and nystagmus

UK Nystagmus Research Workshop


The Nystagmus Network is today hosting the UK Nystagmus Research Workshop 2019 at the School of Optometry and Vision Sciences, Cardiff University. Delegates are joining us from the 6 UK centres of nystagmus research excellence. These are: The School of Optometry and Vision Sciences, Cardiff University The Ulverscroft Eye Unit, University of Leicester Moorfields Eye … Continue reading UK Nystagmus Research Workshop

A survey on glaucoma and nystagmus


You can support the University of Cardiff team to develop new diagnostic testing for people with nystagmus by taking their survey today. “The Research Unit for Nystagmus at Cardiff University is looking for people with nystagmus to take part in a survey that aims to further our understanding on the number of people with nystagmus … Continue reading A survey on glaucoma and nystagmus

In celebration of Irene


Today Nystagmus Network’s Sue and Sara are travelling to Leicester University to attend a day of celebrations. We shall be marking 20 years of ophthalmology in Leicester and, in particular, the work of Professor Irene Gottlob. The programme for the day, at the Ulverscroft Eye Unit, includes a range of presentations on various eye conditions, … Continue reading In celebration of Irene

The nystagmus research HUB is back!


Launched at Open Day 2018, the nystagmus research HUB will back back at Open Day 2019, giving delegates the opportunity to chat one to one with the UK’s leading nystagmus researchers and clinicians, try out equipment, volunteer for research trials and ask anything they want. The HUB will be open throughout the event, so don’t … Continue reading The nystagmus research HUB is back!

Call for applications


The call for the joint Nystagmus Network / Fight for Sight £250k award to undertake a three year nystagmus research project, is now open. Vivien Jones, chair of the Nystagmus Network’s research committee, said: “We are delighted to be joining Fight for Sight in funding a post-doctoral researcher for nystagmus. This means we will be … Continue reading Call for applications