Congratulations, team Leicester


Leicester research team awarded prestigious prize from the Royal College of Ophthalmologists Image credit: Royal College of Ophthalmologists A team of specialist eye doctors at the University of Leicester have received a national award for their work, which will improve diagnosis and management for children with nystagmus. The study was jointly funded by the Nystagmus … Continue reading Congratulations, team Leicester

Nystagmus in Down Syndrome – a Retrospective Notes Review


Nystagmus has been reported in up to 30% of people with Down Syndrome (DS), and yet is still not well understood. This study, by a team at Moorfields Eye Hospital, aims to characterise the clinical features of patients with DS and nystagmus. It is recently published in the British and Irish Orthoptic Journal (BIOJ). The … Continue reading Nystagmus in Down Syndrome – a Retrospective Notes Review

Thank you, Harshal


The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in the research space as a volunteer for some time, Harsh joined us as a trustee in November 2021. He is now a stalwart of the … Continue reading Thank you, Harshal

Thank you, Vivien


Vivien Jones is the Founder and Honorary President of the Nystagmus Network. She started the charity in 1984 to support parents like her. Her son, Sam had recently been diagnosed with nystagmus. She could find no information about the condition and resolved to change that. Watch the story of the Nystagmus Network on video here … Continue reading Thank you, Vivien

People’s perceptions of nystagmus and the impact of Covid-19


In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show that people with nystagmus tended to predict that the public would not think that the condition affects their daily lifestyle as much as it actually … Continue reading People’s perceptions of nystagmus and the impact of Covid-19

Nystagmus Network funds research equipment


At the end of 2021 the Nystagmus Network invited funding applications from UK nystagmus researchers to cover the cost of equipment needed to take their work forward. This week work has begun at the University of Sheffield and Sheffield Hospital using newly funded equipment. Orthoptist, Gemma Arblaster, from the University of Sheffield applied for a … Continue reading Nystagmus Network funds research equipment

Nystagmus affects quality of life of children and their parents, confirms new research


A team at the Eye Hospital and School of Ophthalmology and Optometry at Wenzhou Medical University in China have recently published their research on the effects of childhood cataract surgery in young children. The results show that the impact of nystagmus, strabismus and amblyopia, resulting from the cataracts, not from the surgery, have a significant impact … Continue reading Nystagmus affects quality of life of children and their parents, confirms new research

Eye health experts seek to refresh eye research priorities


Eye experts across the UK are calling for your input into a new survey designed to refresh the James Lind Alliance Sight Loss and Vision research priorities that were first published in 2013. Despite on-going eye research taking place across the world, there are still many questions about the prevention, diagnosis and treatment of sight loss and … Continue reading Eye health experts seek to refresh eye research priorities

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism (OA, or OCA). Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a … Continue reading Does albinism protect against AMD?

Grant funding available for nystagmus research


The Nystagmus Network / Fight for Sight joint call for a small grant award in nystagmus research, focusing on quality of life or causes (including genetic), diagnostic testing / analysis or treatments, is now live and open for applications. Full details, as well as the guidance document for the applicant can be found on the … Continue reading Grant funding available for nystagmus research