This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal … Continue reading The abseil is this weekend!
Category: Charity highlights
Another Nystagmus Network first!
Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs … Continue reading Another Nystagmus Network first!
Roselle is coming to Open Day
Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this … Continue reading Roselle is coming to Open Day
Open Day tickets on sale now!
Tickets for the Nystagmus Network Open Day 2018 go on general sale at midday today. With a packed line up of speakers and presenters, including Marsha De Cordova MP, Shadow … Continue reading Open Day tickets on sale now!
Well done, Simon! He did it!
Simon jumped out of a plane for the Nystagmus Network this morning and has raised over £1,000 for the charity! Fresh back from a family holiday, Simon took to the … Continue reading Well done, Simon! He did it!
Charity trustees meet Marsha
On the Tuesday of ‘wobbly week’ 2018, a group of trustees were invited to Parliament to meet with Marsha De Cordova MP, Shadow Minister for Disabilities. Marsha has nystagmus herself … Continue reading Charity trustees meet Marsha
Menna and Jen are coming to Snow Camp!
The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging … Continue reading Menna and Jen are coming to Snow Camp!
How amazing is Rosine?
Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my … Continue reading How amazing is Rosine?
Open Day tickets for members – available soon
Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets … Continue reading Open Day tickets for members – available soon
How amazing is Katrina?
Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. … Continue reading How amazing is Katrina?