We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network
The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network
Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords
The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the Richard Wilson Essay Prize 2024. The charity … Continue reading Justine wins the Richard Wilson Prize 2024
Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on Sunday 11 August. Watch and hear Gerard … Continue reading Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal
We are delighted to announce that the Nystagmus Network has jointly awarded two new nystagmus research grant awards with our funding partners Fight for Sight. The two successful applicants are … Continue reading The Fight for Sight/Nystagmus Network Small Grant Award
Publication of Clinical Practice Points for managing nystagmus in childhood The Nystagmus Network has welcomed the publication of new guidance on the management of nystagmus in children by the Royal … Continue reading Nystagmus Care Pathway published
We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus community in all … Continue reading Trustee vacancies
The Nystagmus Network is thrilled to be part of ALLIANCE, the network for health and social care organisations in Scotland. In this video, Sue introduces the Nystagmus Network as a … Continue reading The Nystagmus Network joins the Alliance
