‘Rip Off Britain’ air Dan’s story of Uber refusals


A man from Cardiff is taking Uber to court over claims they refused to pick him up with his guide dog on more than 100 occasions. Cardiff-based entrepreneur, Dan Williams is bringing a case against the company after he claims they regularly refuse to pick him up with his dog, Zodiac. Dan, who is registered blind … Continue reading ‘Rip Off Britain’ air Dan’s story of Uber refusals

Richard Osman to voice Radio 4 appeal


The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and author, Richard Osman on Sunday 5 July. Richard has nystagmus himself and says it is his “absolute pleasure” to be able to support the charity … Continue reading Richard Osman to voice Radio 4 appeal

Does nystagmus or ocular albinism affect my immunity?


Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: “IN (infantile nystagmus) or OA (ocular albinism) in isolation are not associated with compromised immunity. “There are some syndromic forms of albinism that are associated … Continue reading Does nystagmus or ocular albinism affect my immunity?

Improving the infantile nystagmus test


Delegates at 100% Optical learned about progress on refining the way an eye movement disorder is identified in babies Professor Jon Erichsen from the University of Cardiff gave a presentation on infantile nystagmus to eye care professionals at the recent 100% Optical event (ExCeL London, 25–27 January).   Professor Erichsen highlighted that in the condition there … Continue reading Improving the infantile nystagmus test

Alison joins the Nystagmus Network


We are delighted to announce that Professor Alison Leary MBE has joined the Nystagmus Network as a trustee. After spending 10 years in science Prof. Leary undertook an RN diploma at The Nightingale School at St Thomas Hospital (now Kings College London). She attained a Masters in Biomedical Science (Haematology) and worked in acute Haematology … Continue reading Alison joins the Nystagmus Network

Daniel joins the Nystagmus Network


The Nystagmus Network has appointed Daniel Williams, sight loss campaigner and founder of Visualise Training and Consultancy, to its committee of Trustees. Chair of the charity’s trustees, Tim Cuddeford said: “We are delighted to welcome Daniel to the committee as he brings a comprehensive overview of the sight loss and optical sectors and first-hand knowledge … Continue reading Daniel joins the Nystagmus Network

How well will my child see?


Researchers from the University of Leicester have identified a new way of predicting the future vision of children with infantile nystagmus. The research, published in the journal Ophthalmology has developed a grading system for retinal development in infants and young children with the condition, providing an important tool for ophthalmologists to determine their future vision. … Continue reading How well will my child see?

Funding research into blindness


Please listen to the ‘In Touch’ programme on BBC Radio 4 to catch Head of Research at Fight for Sight, Dr Rubina Ahmed and Professor Chris Hammond talking about the launch of their new 2020 campaign. During the show, they’ll discuss the ‘1 to 20’ funding gap – only 1% of public funding is dedicated … Continue reading Funding research into blindness

Adam Hills: Take His Legs


This Friday evening at 11.30pm on Channel 4, straight after The Last Leg, you can catch a documentary following the comedian and Last Leg co-host, Adam Hills as he embarks on a personal, physical and emotional journey to live out his boyhood dream to play competitive rugby league. The film charts the story of the … Continue reading Adam Hills: Take His Legs