Wobbly Eyes in German


The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations are working closely together to ensure that information and support is available for German speakers everywhere, affected by nystagmus. To this end, today we celebrate … Continue reading Wobbly Eyes in German

Have you got our new number?


The registered charity number for the Nystagmus Network has changed. Our new number is 1180450. This marks our successful transition from humble charity to a Charitable Incorporated Organisation, as voted for by our members at our AGM in September. Only our number has changed. We remain a membership organisation serving the needs of the nystagmus … Continue reading Have you got our new number?

Nystagmus question on Fifteen to One


If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a question about nystagmus. Quiz master, Sandi Toksvig asked “Which sensory organs are affected by the medical condition nystagmus?” The contestant clearly knew his stuff as … Continue reading Nystagmus question on Fifteen to One

Seeing Beyond the Eyes


The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, opticians throughout England and Wales now have a handy resource pack and ongoing training programmes to help them signpost patients for condition specific support, including … Continue reading Seeing Beyond the Eyes

Magnets and nystagmus – research news update


Researchers at University College London, Moorfields Eye Hospital, and the University of Oxford are developing magnetic implants to treat nystagmus. Last year, Nystagmus Network assisted Dr Parashkev Nachev, from University College London, in recruiting suitable candidates with the acquired from of nystagmus to take part in the next stage trial, following initial success with a single subject. … Continue reading Magnets and nystagmus – research news update

Nystagmus research news update from Dr Helen Griffiths at Sheffield University


Helen and her team are working on a virtual reality solution for the problematic sympton of oscillopsia in Acquired Nystagmus. Helen writes: “Many thanks to you all at Nystagmus Network and to your partners Fight for Sight for your support, allowing us to continue the VR project work. We have started and have been able … Continue reading Nystagmus research news update from Dr Helen Griffiths at Sheffield University

Nystagmus Network launches new publication on nystagmus and driving


Whether or not people with nystagmus can drive is probably the most frequently asked question the charity receives. Because nystagmus is such a complex condition and affects everyone differently, there is no definitive answer. In our new publication, Nystagmus and Driving, we address all the issues, answer your questions and signpost to free and concessionary … Continue reading Nystagmus Network launches new publication on nystagmus and driving

Nystagmus Network and Fight for Sight fund two new nystagmus research projects


Nystagmus Network and Fight for Sight have partnered to fund research aimed at the early detection of nystagmus and improve the quality of life of those with nystagmus Fight for Sight, the UK’s leading eye research charity, and Nystagmus Network, the foremost charity in the UK providing support and information about nystagmus, are working in partnership to fund … Continue reading Nystagmus Network and Fight for Sight fund two new nystagmus research projects