Elections Bill could weaken protections for blind and partially sighted voters


Urgent update from RNIB:  The Government has put forward a draft law – the Elections Bill – which weakens protection for an independent vote for blind and partially sighted people. But there is still time to stop this from happening.  RNIB need to persuade the Government to maintain the existing law, and need your help to do it.  Will you meet … Continue reading Elections Bill could weaken protections for blind and partially sighted voters

The State of the UK’s Eye Health


A NEW report paints a stark picture of the impact the Covid-19 pandemic has had on eye health in Britain – with experts warning of a ‘ticking timebomb’ and significant fallout for years to come. The State of the UK’s Eye Health 2021 report, commissioned by Specsavers in collaboration with leading eye health experts and charities, … Continue reading The State of the UK’s Eye Health

Nystagmus Network wins £1,000 Movement for Good award


Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The Nystagmus Network is one of 500 winners in specialist insurer Ecclesiastical’s Movement for Good awards, which is giving £1million to charities this summer. Although at … Continue reading Nystagmus Network wins £1,000 Movement for Good award

Nystagmus Network® Trade Marks


The Nystagmus Network charity name and logo are now Registered Trade Marks thanks to the advice and support of our friends Simon, Sarah, Akber and Ella at the London law firm, Fox Williams LLP. Begun as a self-help group in 1984 and a registered charity in England and Wales since 1990, the Nystagmus Network has … Continue reading Nystagmus Network® Trade Marks

Introducing Ian


Ian Springett joined the Nystagmus Network staff team in January 2021. Following a career in public service, most recently as an ECLO (Eye Clinic Liaison Officer) and Complaints Officer with the NHS and before that serving as a Police Officer for 30 years, Ian has settled quickly into his new role with the charity as … Continue reading Introducing Ian

Congratulations, Dr Thomas


The Nystagmus Network is sending huge congratulations to the newly qualified Dr Nikita Thomas. Dr Thomas achieved her PhD this month. Nikita is well known to members of the Nystagmus Network for her engaging personality and confident presentations on her latest nystagmus research. On World Sight Day 2020, Nikita was named an Eye Health Hero … Continue reading Congratulations, Dr Thomas

Gene Vision launches


Gene Vision launched to support those diagnosed with genetic eye diseases London, 01 December 2020 A new website, Gene Vision, has launched today, developed by Professor Mariya Moosajee and Dr Alex Yeong, supported by Dr Peter Thomas (Director of Digital Innovation at Moorfields Eye Hospital). The new site is intended for adults, children and their … Continue reading Gene Vision launches

Sight Loss Sector Charter launches at the Visionary Annual Conference 2020


The Nystagmus Network has joined Visionary as a national member and Sue has been attending the virtual national conference this week. Today marks the official launch of a new Sight Loss Charter which the Nystagmus Network is proud to sign up to. Official press release from Visionary A new Sight Loss Sector Charter has been … Continue reading Sight Loss Sector Charter launches at the Visionary Annual Conference 2020

Thank you to National Lottery players


Thanks to the generosity of National Lottery players, the Nystagmus Network is in receipt of a further grant to support the work of the charity. This welcome additional funding is enabling us to continue delivering support and information services to the nystagmus community, albeit virtually. Charity staff are busier than ever answering enquiries by phone, … Continue reading Thank you to National Lottery players

Congratulations, Nikita


On World Sight Day 2020, the Nystagmus Network is delighted to celebrate the achievement of Nikita Thomas who has been named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nikita, who works in nystagmus research at the University of Cardiff, was nominated by the Nystagmus Network and has … Continue reading Congratulations, Nikita