Fight for Sight and Nystagmus Network are funding research into the impact of glare in infantile nystagmus and albinism in the hope of improving outcomes for people with the condition. People with nystagmus often experience glare, but until now this has not been researched thoroughly. The team at University of Leicester, led by Dr Frank … Continue reading Two new nystagmus research projects funded
Category: research
Nystagmus research grant funding open for applications
The next round of small grant awards for nystagmus research is now open for application. The grant, funded jointly by Fight for Sight and the Nystagmus Network is worth up to £15,000. The Fight for Sight / Nystagmus Network Small Grant Award One award to support clinical research to address visual impairment associated with nystagmus, focusing on … Continue reading Nystagmus research grant funding open for applications
Parents invited to take part in research
Sophie Waltl (Bachelor of Occupational Therapy honours student, Australian Catholic University) is assisting with research on a new assessment that describes vision use in children – the ‘Measure of Early Vision Use’ or MEVU. The research team are seeking specific feedback from parents / caregivers to understand whether MEVU (which was originally developed for children with … Continue reading Parents invited to take part in research
Circadian Therapeutics Sleep Health Survey
Circadian Therapeutics are seeking vision-impaired individuals between 18 – 70 years to participate in a research project exploring experiences of sleep and daily rhythm disruption. In partnership with the Blind Veterans UK, Circadian Therapeutics is running a survey to identify sleep and circadian disruption experienced by vision impaired individuals. The purpose of this work, first … Continue reading Circadian Therapeutics Sleep Health Survey
Congratulations, Dr Thomas
The Nystagmus Network is sending huge congratulations to the newly qualified Dr Nikita Thomas. Dr Thomas achieved her PhD this month. Nikita is well known to members of the Nystagmus Network for her engaging personality and confident presentations on her latest nystagmus research. On World Sight Day 2020, Nikita was named an Eye Health Hero … Continue reading Congratulations, Dr Thomas
Vision impairment and employment – a research project
Guest Post: Dr. Liz Ellis, VICTAR, University of Birmingham The Vision Impairment Centre for Teaching and Research (VICTAR) at the University of Birmingham is conducting research to understand more about the factors which contribute to employment outcomes (the good and not so good) for individuals with a visual impairment, living and/or working in Greater London. … Continue reading Vision impairment and employment – a research project
Nystagmus does cause visual crowding – it’s official
It’s long been understood that people with nystagmus can struggle to pick out objects from an image or face in a crowd. That’s a phenomenon called visual crowding. But how does nystagmus cause this? Now Vijay, Taylor, nystagmus researcher at London’s Moorfields Eye Hospital and University College London has shown that the eye movements associated … Continue reading Nystagmus does cause visual crowding – it’s official
Thank you, Nikita
On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, we’re sure that Nikita has a brilliant nystagmus research career ahead of her. And now we’re not the only ones to think so. You can … Continue reading Thank you, Nikita
Thank you, Mervyn
Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who fear their child will develop severe visual impairment. Thanks to the work of Dr Melvyn Thomas and the research team at the University of Leicester … Continue reading Thank you, Mervyn
Thank you, Libby
Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment and the impacts on identity formation for her dissertation. You can read more about Libby’s research here: https://nystagmusnetwork.org/can-you-help-libby-with-her-research/ Thank you for being a great ‘big … Continue reading Thank you, Libby