UK Nystagmus Research Meeting takes place


Researchers and clinicians representing nystagmus centres of excellence from Cardiff, London, Plymouth, Sheffield and Southampton gathered in Birmingham on Friday 28 September as guests of the Nystagmus Network ahead of the charity’s annual Open Day to plan the way ahead for collaborative nystagmus research. Jon Erichsen and Matt Dunn from Cardiff University, Maria Theodorou from … Continue reading UK Nystagmus Research Meeting takes place

Research funding will use iPads to identify the best method to manage nystagmus


Fight for Sight and The Nystagmus Network have announced funding for three exciting nystagmus research projects at the Nystagmus Network Conference, which is taking place today during National Eye Health Week 2018. In total £30,000 in funding will be used for projects bringing benefits to children and adults living with the condition, which is characterised … Continue reading Research funding will use iPads to identify the best method to manage nystagmus

UK Nystagmus Research Meeting 2018


Researchers and clinicians from Cardiff, London, Plymouth, Sheffield and Southampton are meeting today to plan the way ahead for nystagmus research. Our medical experts are joined by charity trustees and our funding partners, Fight for Sight. The half day conference, hosted by the Nystagmus Network, takes place in Birmingham today ahead of the charity’s Open … Continue reading UK Nystagmus Research Meeting 2018

A research focus for Open Day


This year’s Open Day has a huge emphasis on nystagmus research. Throughout the day delegates will be able to visit our Research Hub and speak with researchers and clinicians from Moorfields, London, the School of Optometry and Vision Sciences at Cardiff University, the School of Ophthalmology and Orthoptics at the University of Sheffield and the … Continue reading A research focus for Open Day

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!

Nystagmus acquired after a stroke?


Professor Fiona Rowe from the Institute of Psychology, Health and Society at the University of Liverpool is currently seeking patients to take part in an online anonymous questionnaire about eye movement disorders. An expert in post stroke vision, Professor Rowe would like to recruit adult patients with acquired nystagmus to help determine future patient treatment … Continue reading Nystagmus acquired after a stroke?

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Does albinism protect against AMD?

Vicky and Claire show amazing support


Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common! On 23 September they will both be scaling down the Olympic Park Orbit alongside their Team Nystagmus Network Abseil team mates. They’re doing it to raise funding for nystagmus research. Every penny they raise will go directly into … Continue reading Vicky and Claire show amazing support

Try VR at Open Day


The Nystagmus Network is currently funding pioneering research at the University of Sheffield which could really help improve the quality of life of people who acquire nystagmus in adulthood. Acquired Nystagmus is usually accompanied by oscillopsia, which means that the subject sees a moving image rather than a stable one. This is a particularly disorientating and … Continue reading Try VR at Open Day