Nystagmus does cause visual crowding – it’s official


It’s long been understood that people with nystagmus can struggle to pick out objects from an image or face in a crowd. That’s a phenomenon called visual crowding. But how does nystagmus cause this? Now Vijay, Taylor, nystagmus researcher at London’s Moorfields Eye Hospital and University College London has shown that the eye movements associated … Continue reading Nystagmus does cause visual crowding – it’s official

Thank you, Nikita


On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, we’re sure that Nikita has a brilliant nystagmus research career ahead of her. And now we’re not the only ones to think so. You can … Continue reading Thank you, Nikita

Thank you, Mervyn


Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who fear their child will develop severe visual impairment. Thanks to the work of Dr Melvyn Thomas and the research team at the University of Leicester … Continue reading Thank you, Mervyn

Thank you, Libby


Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment  and the impacts on identity formation for her dissertation. You can read more about Libby’s research here: https://nystagmusnetwork.org/can-you-help-libby-with-her-research/ Thank you for being a great ‘big … Continue reading Thank you, Libby

Living with Acquired Nystagmus and Oscillopsia?


The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. If you’re living with AN or oscillopsia and would like to join the group, you’d be most welcome.  At our recent virtual Open Day we were … Continue reading Living with Acquired Nystagmus and Oscillopsia?

New nystagmus research


We are excited to announce the start of a new research study into nystagmus The aim of the study is to gather evidence about people’s perceptions of nystagmus. The results will help shape further nystagmus research and awareness raising strategies, eventually contributing to better understanding of the condition and improved quality of life as a … Continue reading New nystagmus research

Do you have Acquired Nystagmus or Oscillopsia?


We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have either or both, we’d love to hear from you. You can help us develop a further research study into these complex, life changing conditions. We … Continue reading Do you have Acquired Nystagmus or Oscillopsia?

Nystagmus Network hosts UK research workshop


On Friday 2 October, the Nystagmus Network once again hosted the annual UK nystagmus research workshop. This is an opportunity for researchers, clinicians and academics to get together to share their work and plan greater collaboration. They are, after all, all working towards the same goal. The workshop took place via zoom. Nystagmus Network trustees … Continue reading Nystagmus Network hosts UK research workshop

Can you help Libby with her research?


Introducing Libby I am a geography student studying in my final year at Loughborough University.  I am seeking participants for my dissertation study which aims to explore the experiences of young adults (18-25) in their local space / environment & the impacts on identity formation. This study is inspired by my two younger sisters, who … Continue reading Can you help Libby with her research?

Congratulations, Nikita


On World Sight Day 2020, the Nystagmus Network is delighted to celebrate the achievement of Nikita Thomas who has been named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nikita, who works in nystagmus research at the University of Cardiff, was nominated by the Nystagmus Network and has … Continue reading Congratulations, Nikita