Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation.
Topics we have covered so far have included null point surgery, driving and nystagmus, talking to you child about nystagmus and whether or not to have cataracts removed when you have nystagmus.
Anyone can join in the conversation and share their thoughts, questions, experience and point of view.
Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering things like going to school, out and about and making friends, the booklet uses child friendly language to help prepare a child for life with nystagmus.
Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone whenever she is available. If she happens to be away from her desk, or in the evenings and at weekends, you can leave a message. Then Sue, Rachel or Sara will call you back.
The number to call is 01427 718093
Alternatively, if time is short, you can continue to use the [email protected] email address for all enquiries, or request support and information through our contact form.
This new service is thanks to BT telecomms engineer, Jason, who braved the falling snow to install our new landline. Thank you, Jason!