Acumen are currently organising research in the UK on behalf of a national sight loss charity to test a quality of life measure that is currently being developed. For the survey they are looking to blind and partially sighted people. The quality of life measure will help the charity assess the ongoing wellbeing of people … Continue reading Quality of Life Research
This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!
Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is joining Team Nystagmus Network Abseil at the suggestion of his wife and for his young son, Owen, who has nystagmus. Apparently, some of Matt’s sponsors … Continue reading Matt is joining the abseil
Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open Day on building social networks. You can read all about Glen’s adventures as a successful young man about London, who just happens to have aniridia … Continue reading Glen’s taking the abseil challenge. Could you?
Introducing Claire, the next member of Team Nystagmus Network Abseil. Claire is a keen rock climber, so abseiling her way down the ArcelorMittal Orbit is going to be a walk in the park! She’s doing it all to raise money for nystagmus research at Moorfields and UCL. If you’d like to join Claire, please contact … Continue reading Claire’s taking the leap for nystagmus. Want to join her?
On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs of his 1,000 mile Big Blind Walk? On that day Julian will be walking from Helmsdale to Dunbeath in the Scottish Highlands along the A9 … Continue reading Nystagmus in the open and the Big Blind Walk
A study by the Down’s Syndrome Vision Research Unit and Research Unit for Nystagmus (RUN), School of Optometry and Vision Sciences are looking to recruit children to take part in a research study. What is involved? Your child’s vision will be tested by a qualified optometrist in the Special Assessment clinic. This will take approximately 30 … Continue reading Characteristics and Impact of Nystagmus in Children With and Without Down’s Syndrome Research Study
Would you like to participate in a study researching the support and information available for people with Nystagmus and their families? The team based at the University Hospital Southampton are running a short study – if you would like to get involved please get in touch by completing the form below. By completing the form you … Continue reading University Hospital Southampton Questionnaire Study 2017
One of the main goals at the Nystagmus Network is to encourage research with a view to finding treatments, a cure and to improve the everyday lives of those with nystagmus. In order to meet this goal, the charity has created a Research Strategy which will enable the Nystagmus Network to plan its involvement with the … Continue reading Nystagmus Network Research Strategy 2017-19
Future generations of orthoptists graduating from Sheffield University will be even better placed to help nystagmus patients thanks to a new £30,000 eye movement recording laboratory. Only two other universities (Liverpool and Glasgow Caledonian) train orthoptists, so Sheffield’s new facility will have big impact on the profession. Within five years around 250 orthoptists will have … Continue reading Training boost for orthoptists