Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. Contribute your experiences, ideas or skills to help others. Expert presentations Dr Simon Hayhoe from Bath University Inclusive Technologies for VI people Dr Ngozi Oluonye from Great … Continue reading ANUK conference 2019
Category: Posts
Pizza in Paris
A report by John Sanders, former Nystagmus Network UK chairman and development manager, on the recent Open Day of the French Nystagmus Network Nanterre, Paris, France, Saturday, April 6, 2019 Guest speaker, Dr François Audren tells the 4th Association Mouvement Nystagmus conference early on that visual acuity (VA) is a poor measure of how people … Continue reading Pizza in Paris
Daniel’s a man on a mission
Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers and employees. Founder of Visualise Training, Daniel is working hard to convince the business world one company at a time. Members of the Nystagmus Network … Continue reading Daniel’s a man on a mission
April deals on our Ultrachallenges
Push Yourself Further – 10 great events in 2019 Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a marathon runner wanting to ‘up’ your distance? Whether it’s along magnificent coastal scenery, or in stunning open countryside, there’s an Ultra Challenge for you. Walk, Jog or … Continue reading April deals on our Ultrachallenges
Regular giving
The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the condition for a better quality of life for everyone affected and funding research. Through CAF Donate our supporters can set up regular giving The Nystagmus … Continue reading Regular giving
Real life nystagmus stories
The Nystagmus Network is pleased to be able to bring you so many real life nystagmus stories, thanks to the thoughtfulness and generosity of members of the nystagmus community. Today we bring you Mélissa’s story.
Free benefits information
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is available to members of the charity.
Never a better time to join
Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also receive 10 FREE Nystagmus Network Christmas cards, worth £5. There’s never been a better time to join us. JOIN US HERE
Giving Tuesday is here
Why not take the opportunity today to show the charity closest to your heart just how much you care? All donations are gratefully received, especially today, but there are lots of other ways you can lend the Nystagmus Network your support, too: become a member go shopping in our online store sign up for a bucket … Continue reading Giving Tuesday is here
#YouMadeItHappen – Glen
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen