Thank you, Harshal

The Nystagmus Network’s newest trustee, Dr Harshal Kubavat has a young child with nystagmus. Like many parents, he had never heard of nystagmus before. After supporting the charity’s work in the research space as a volunteer for some time, Harsh joined us as a trustee in November 2021. He is now a stalwart of the … Continue reading Thank you, Harshal

People’s perceptions of nystagmus and the impact of Covid-19

In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show that people with nystagmus tended to predict that the public would not think that the condition affects their daily lifestyle as much as it actually … Continue reading People’s perceptions of nystagmus and the impact of Covid-19

Join us for the big lunch

As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join us for our very own virtual big lunch. Let’s all get together! Whether you’re lunching at home in the garden, in your street or a … Continue reading Join us for the big lunch

What’s your nystagmus research question?

The Nystagmus Network has been investing in research since the 1990s. Nystagmus academics, clinicians and researchers in Cardiff, Leicester, London, Plymouth, Sheffield and Southampton continue to focus on causes, effects, treatments and quality of life.   In the last 30 years we’ve seen huge advances in the sophistication of diagnostic techniques, with more widespread use of … Continue reading What’s your nystagmus research question?

Run the Royal Parks

The Royal Parks Half Marathon is a spectacular run through central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens. Stephen … Continue reading Run the Royal Parks

Quality of Life Research

Acumen are currently organising research in the UK on behalf of a national sight loss charity to test a quality of life measure that is currently being developed. For the survey they are looking to blind and partially sighted people. The quality of life measure will help the charity assess the ongoing wellbeing of people … Continue reading Quality of Life Research

Open Day digital programme – out now

All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now

Free iPads or iPhones for children with a vision impairment aged 3-18

Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy.  Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18

Albinism Awareness Day

Zoom celebration for International Albinism Awareness Day on 13 June 2021 Guest post from Roselle Potts, Chair of the Albinism Fellowship To mark International Albinism Awareness Day* on 13 June the Albinism Fellowship is running a mini conference on Zoom. The event will kick off at 2pm and after a brief introduction session there will … Continue reading Albinism Awareness Day