#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Simon


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Simon – you helped make that happen! Today the whole nystagmus community says thank you to you.

Does albinism protect against AMD?


We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Does albinism protect against AMD?

Nystagmus Research Conference 2018


The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing and diagnostics, genetics and technological intervention. We will also be joined by a representative from Fight for Sight, our research funding partner. Agenda items include … Continue reading Nystagmus Research Conference 2018

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s services and our contact details so that patients with nystagmus can find us easily for information and support. Eye care and Health Professionals armed with … Continue reading Seeing Beyond The Eyes

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win £450? How to enter: Take a photo of yourself holding up your Small Charity Week poster that reads: “I love Nystagmus Network because (and say … Continue reading You could win £450 for the Nystagmus Network

Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online


We all shop online, but did you know that, by signing up with Easyfundraising.com you could be raising money for the Nystagmus Network – and it doesn’t cost you a penny. You could also take advantage of some great deals. We already have a growing group of shoppers collecting a few pence, or even a … Continue reading Join Easyfundraising.com and raise donations for the Nystagmus Network every time you shop online

We can help with your bucket list


Ever wanted to try the London to Brighton cycle run? Well, now you can. Skyline Events and the Nystagmus Network can make your dream come true. Watch the video here. Apply for your place by clicking this link. Let us know so we can send you your free Nystagmus Network T-shirt.    

Mousetrap Theatre Experience, London


The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects. The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would … Continue reading Mousetrap Theatre Experience, London