Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy. Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18
Zoom celebration for International Albinism Awareness Day on 13 June 2021 Guest post from Roselle Potts, Chair of the Albinism Fellowship To mark International Albinism Awareness Day* on 13 June the Albinism Fellowship is running a mini conference on Zoom. The event will kick off at 2pm and after a brief introduction session there will … Continue reading Albinism Awareness Day
Ian Springett joined the Nystagmus Network staff team in January 2021. Following a career in public service, most recently as an ECLO (Eye Clinic Liaison Officer) and Complaints Officer with the NHS and before that serving as a Police Officer for 30 years, Ian has settled quickly into his new role with the charity as … Continue reading Introducing Ian
Please nominate the Nystagmus Network to win a £1,000 Christmas bonus as part of Ecclesiastical Insurance’s annual 12 days of giving festive campaign. Ecclesiastical will be awarding £1,000 to 12 charities in 12 days this December. Please help us be one of them. Nominations are open now until 21 December. £1,000 would pay for nystagmus … Continue reading Please nominate the Nystagmus Network
Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and skills, especially within a small organisation like ours, it can be rewarding for many reasons. Meet our trustees here. The charity’s trustees share ultimate responsibility … Continue reading Could you be a Nystagmus Network trustee?
Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book here. In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need … Continue reading Can I tell you about nystagmus?
WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 3: Would it cause more problems to stop the eye wobble? (HL) We have very poor understanding of nystagmus, why it occurs and … Continue reading Your nystagmus research questions answered – question 3
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered
Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from home, some things have changed. Debbie is currently furloughed and spending important time at home looking after her family and home schooling her daughters. Sara … Continue reading Nystagmus Network staff under lockdown