Category: Posts

Fight for Sight survey on eye conditions and sight loss

Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey you will be helping Fight for Sight to put sight loss on the map and help increase the amount of money going into eye research. … Continue reading Fight for Sight survey on eye conditions and sight loss

Trekking through Middle Earth for nystagmus research

Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New Zealand to raise money for a complex eye condition that blurs his vision. Mike has nystagmus, which he refers to as “wiggly eyes” and so … Continue reading Trekking through Middle Earth for nystagmus research

Parent Power comes to Cambridge

Parent Power, funded by the National Lottery Community Fund SORRY – BOOKINGS NOW CLOSED. The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      DoubleTree by Hilton, Cambridge City Centre Date:          Saturday 25 January Time:         9.30am to 3pm The aim of the project is to empower parents and carers … Continue reading Parent Power comes to Cambridge

Would your child like a German pen friend?

Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with someone in Germany. If your son or daughter would like to send and receive postcards and letters, please complete the form below. Through our partnership … Continue reading Would your child like a German pen friend?

Parent Power comes to London

Parent Power, funded by the National Lottery Community Fund SORRY – BOOKING IS NOW CLOSED The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      Can Mezzanine, Borough, London Date:          Saturday 23 November Time:         9.30am to 1pm The aim of the project is to empower parents and carers with … Continue reading Parent Power comes to London

13% of MS patients have acquired nystagmus

In a report presented this summer, 15 of a sample of 116 patients with Multiple Sclerosis were found to have Acquired Nystagmus. Ocular manifestations often present first in multiple sclerosis September 6, 2019 COEUR D’ALENE, Idaho — There is a high frequency of ocular manifestations in patients with multiple sclerosis, both at onset and during the … Continue reading 13% of MS patients have acquired nystagmus

Are you a digital champion?

Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. If you have a connection with nystagmus, have digital experience and expertise, could easily travel to London for quarterly meetings and would be interested in … Continue reading Are you a digital champion?

Mike’s wiggly walk – video update

Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update