Please nominate the Nystagmus Network to win a £1,000 Christmas bonus as part of Ecclesiastical Insurance’s annual 12 days of giving festive campaign. Ecclesiastical will be awarding £1,000 to 12 charities in 12 days this December. Please help us be one of them. Nominations are open now until 21 December. £1,000 would pay for nystagmus … Continue reading Please nominate the Nystagmus Network
Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and skills, especially within a small organisation like ours, it can be rewarding for many reasons. Meet our trustees here. The charity’s trustees share ultimate responsibility … Continue reading Could you be a Nystagmus Network trustee?
Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book here. In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need … Continue reading Can I tell you about nystagmus?
WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 3: Would it cause more problems to stop the eye wobble? (HL) We have very poor understanding of nystagmus, why it occurs and … Continue reading Your nystagmus research questions answered – question 3
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered
Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from home, some things have changed. Debbie is currently furloughed and spending important time at home looking after her family and home schooling her daughters. Sara … Continue reading Nystagmus Network staff under lockdown
This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, but it was certainly fun, got us all together and was just a little bit competitive! Congratulations to Sara, Nick and Rogier for walking away … Continue reading Join our virtual quiz night
A great way to make your time outdoors fun with the children is to go on a bear hunt. Inspired by the lovely Michael Rosen’s fabulous book “We’re going on a bear hunt” people all over the world are placing teddy bears in their windows so that children can spot them when they’re out walking … Continue reading Have you been on a bear hunt yet?
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.