The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the condition for a better quality of life for everyone affected and funding research. Through CAF Donate our supporters can set up regular giving The Nystagmus … Continue reading Regular giving
Category: Posts
Real life nystagmus stories
The Nystagmus Network is pleased to be able to bring you so many real life nystagmus stories, thanks to the thoughtfulness and generosity of members of the nystagmus community. Today we bring you Mélissa’s story.
Free benefits information
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is available to members of the charity.
Never a better time to join
Joining the Nystagmus Network as a member means becoming part of the biggest nystagmus patient group in Europe. Alongside all the other benefits of membership, TODAY ONLY new members also receive 10 FREE Nystagmus Network Christmas cards, worth £5. There’s never been a better time to join us. JOIN US HERE
Giving Tuesday is here
Why not take the opportunity today to show the charity closest to your heart just how much you care? All donations are gratefully received, especially today, but there are lots of other ways you can lend the Nystagmus Network your support, too: become a member go shopping in our online store sign up for a bucket … Continue reading Giving Tuesday is here
#YouMadeItHappen – Glen
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen
#YouMadeItHappen – Steph
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.
#YouMadeItHappen – Simon
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Simon – you helped make that happen! Today the whole nystagmus community says thank you to you.
Does albinism protect against AMD?
We are seeking potential research candidates on behalf of researchers in Southampton (Jay Self and Helena Lee) who must be over the age of 60 and have any form of albinism. Thank you to those who have already responded. We have already found 12 people, but we really need 20 for a viable study. If … Continue reading Does albinism protect against AMD?
Nystagmus Research Conference 2018
The Nystagmus Network is hosting a nystagmus research conference later this year. Delegates are senior researchers, academics and clinicians from the top UK nystagmus research centres, with expertise in testing and diagnostics, genetics and technological intervention. We will also be joined by a representative from Fight for Sight, our research funding partner. Agenda items include … Continue reading Nystagmus Research Conference 2018