Quality of Life Research


Acumen are currently organising research in the UK on behalf of a national sight loss charity to test a quality of life measure that is currently being developed. For the survey they are looking to blind and partially sighted people. The quality of life measure will help the charity assess the ongoing wellbeing of people … Continue reading Quality of Life Research

Open Day digital programme – out now


All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now

Free iPads or iPhones for children with a vision impairment aged 3-18


Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy.  Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18

Albinism Awareness Day


Zoom celebration for International Albinism Awareness Day on 13 June 2021 Guest post from Roselle Potts, Chair of the Albinism Fellowship To mark International Albinism Awareness Day* on 13 June the Albinism Fellowship is running a mini conference on Zoom. The event will kick off at 2pm and after a brief introduction session there will … Continue reading Albinism Awareness Day

Introducing Ian


Ian Springett joined the Nystagmus Network staff team in January 2021. Following a career in public service, most recently as an ECLO (Eye Clinic Liaison Officer) and Complaints Officer with the NHS and before that serving as a Police Officer for 30 years, Ian has settled quickly into his new role with the charity as … Continue reading Introducing Ian

Please nominate the Nystagmus Network


Please nominate the Nystagmus Network to win a £1,000 Christmas bonus as part of Ecclesiastical Insurance’s annual 12 days of giving festive campaign. Ecclesiastical will be awarding £1,000 to 12 charities in 12 days this December. Please help us be one of them. Nominations are open now until 21 December. £1,000 would pay for nystagmus … Continue reading Please nominate the Nystagmus Network

Could you be a Nystagmus Network trustee?


Trustees play an essential role in the running of the Nystagmus Network. Whilst it is not a role to be taken on lightly and may be demanding of time and skills, especially within a small organisation like ours, it can be rewarding for many reasons. Meet our trustees here. The charity’s trustees share ultimate responsibility … Continue reading Could you be a Nystagmus Network trustee?

Can I tell you about nystagmus?


Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book here. In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need … Continue reading Can I tell you about nystagmus?

Boost it for June


WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE  From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June