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Nystagmus Network

Supporting people living with nystagmus

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Category: Information and Support

Seeing beyond … a survey


The Nystagmus Network has teamed up with training organisation Visualise to ensure that everyone involved in testing people’s eyesight is nystagmus aware. You can help make sure that all optometry … Continue reading Seeing beyond … a survey

Posted on July 23, 2018Author Sue RickettsCategories Information and SupportTags optometry, survey, Visualise

Celebrating National Sunglasses Day!


As photophobia is a frequent accompaniment to nystagmus and ocular albinism, we’re happy to join in a day of celebrating sunglasses and raising awareness of the importance of protecting your … Continue reading Celebrating National Sunglasses Day!

Posted on June 27, 2018June 26, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags National Sunglasses Day, nystagmus, ocular albinism

The anatomy of the eye


Need a handy guide to how the eye works and what all the parts are called? This great guide from our friends at Fight for Sight will help you understand … Continue reading The anatomy of the eye

Posted on June 8, 2018Author Sue RickettsCategories Information and SupportTags anatomy of the eye, Fight for Sight

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes
People stand at a clinic reception holding Nystagmus Network balloons.

Nystagmus Awareness Day – for clinics


Please help us to promote national and international Nystagmus Awareness Day, on Wednesday 20 June, in clinics and hospitals all over the UK and the world. We have free to … Continue reading Nystagmus Awareness Day – for clinics

Posted on April 18, 2018Author Sue RickettsCategories Events, Fundraising, Information and Support, Nystagmus Awareness DayTags awareness, clinics, hospitals, living with nystagmus, nystagmus, support
ECLO chatting with patient.

Do you know your ECLO?


If you or someone in your family has nystagmus, then make sure you meet your ECLO (Eye Clinic Liaison Officer). You can ask for them the next time you visit … Continue reading Do you know your ECLO?

Posted on April 10, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags ECLO, nystagmus

It’s Tuesday – that’s Nystagmus Networking day on Facebook!


We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling … Continue reading It’s Tuesday – that’s Nystagmus Networking day on Facebook!

Posted on February 27, 2018February 21, 2018Author Sue RickettsCategories Information and SupportTags Facebook, get together, meet up, networking, nystagmus

Monday Focus on Facebook


Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation. Topics we have covered so far have included … Continue reading Monday Focus on Facebook

Posted on February 26, 2018February 21, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags conversation, Facebook, Focus, living with nystagmus, surgery

Explaining nystagmus to a child


Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering … Continue reading Explaining nystagmus to a child

Posted on February 12, 2018Author Sue RickettsCategories Information and SupportTags children

Nystagmus Network launches new information and support line


Anyone needing information or support from the Nystagmus Network can now speak to someone on the phone throughout normal office hours. From Monday to Friday, Sue will answer the phone … Continue reading Nystagmus Network launches new information and support line

Posted on February 6, 2018February 8, 2018Author Sue RickettsCategories Information and SupportTags information, new phone number, support

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