Go hard and go straight home!


Make the most of your time outdoors (or inside!) with one of these fabulous fundraising challenges. choose your challenge sign yourself up set up your Justgiving page for sponsorship Choose from: Climb Everest – A 12 week challenge perfect for isolation. Complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the … Continue reading Go hard and go straight home!

Join our virtual quiz night


This Saturday at 7pm Thank you to everyone who took part in the very first Nystagmus Network virtual quiz night last week. There may have been a few technical hitches, but it was certainly fun, got us all together and was just a little bit competitive! Congratulations to Sara, Nick and Rogier for walking away … Continue reading Join our virtual quiz night

A PhD studentship in nystagmus research – apply now


Applications are now invited for a PhD Studentship to undertake clinical research to address visual impairment associated with nystagmus, focusing on quality of life or causes (including genetic), diagnostic testing / analysis or treatments. Click here for details and to apply The award is jointly funded by the Nystagmus Network and Fight for Sight.

Do you play our lottery?


Sign up for the Nystagmus Network Lottery and you’ll be in with the chance to win £25,000 for just £1 per week. There are lots of smaller weekly prizes, too. All profits, after prizes have been paid, come directly to the Nystagmus Network. This means we can continue our important work providing support and information, … Continue reading Do you play our lottery?

Please support Adam


Please sponsor Adam. He’s standing by to run the postponed London Marathon for the Nystagmus Network, as soon as restrictions are lifted.Adam is running the London Marathon this year, for his daughter, Florence and for all of us. Adam says: “I am honoured to be running the 2020 London Marathon on behalf of the Nystagmus … Continue reading Please support Adam

Have you been on a bear hunt yet?


A great way to make your time outdoors fun with the children is to go on a bear hunt. Inspired by the lovely Michael Rosen’s fabulous book “We’re going on a bear hunt” people all over the world are placing teddy bears in their windows so that children can spot them when they’re out walking … Continue reading Have you been on a bear hunt yet?

30 years of nystagmus research – what a difference it has made


When my daughter was 6 weeks old a paediatrician at baby clinic told me she was blind. Just like that. No preamble. It was a devastating experience, a cruel message, bluntly delivered. I went to see my GP, whom I knew well and trusted. She confirmed what I already suspected. My daughter wasn’t blind, but … Continue reading 30 years of nystagmus research – what a difference it has made

Nystagmus Network research investment 2020 – 2021


An update of our post doctoral award For those of you eagerly awaiting news, alongside charity trustees, of the outcome of 2019/2020 applications for the new post doctoral research project into nystagmus, jointly funded by the Nystagmus Network and Fight for Sight, we can now share with you the somewhat disappointing news that the project … Continue reading Nystagmus Network research investment 2020 – 2021

You can still help us from home


From entertainment packages to fitness equipment and more, you can still support the Nystagmus Network from home, by shopping online through #easyfundraising. Signing up is quick and easy and you’ll raise free donations for us every time you shop online.  Please click here to get started THANK YOU!

Quiz Night!


Want to test your general knowledge? Think you’re the brainiest person in the whole nystagmus community? Now’s your chance to prove it! As well as the glory of winning there are cash prizes for 1st, 2nd and 3rd placed players. Good luck, everyone! Join our virtual quiz night this Saturday at 7pm. Sign up NOW.