Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month. For the remaining … Continue reading Nerves of steel!

Clare did it for nystagmus and for Jessica


Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition. The Royal Parks Half is billed as one of the most picturesque runs in the country, but, sadly, the beautiful autumnal colours were a little washed out … Continue reading Clare did it for nystagmus and for Jessica

Walk Eye to Eye for nystagmus research


Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019. The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on … Continue reading Walk Eye to Eye for nystagmus research

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support … Continue reading Nystagmus Patient Information Day

UK Nystagmus Research Meeting takes place


Researchers and clinicians representing nystagmus centres of excellence from Cardiff, London, Plymouth, Sheffield and Southampton gathered in Birmingham on Friday 28 September as guests of the Nystagmus Network ahead of the charity’s annual Open Day to plan the way ahead for collaborative nystagmus research. Jon Erichsen and Matt Dunn from Cardiff University, Maria Theodorou from … Continue reading UK Nystagmus Research Meeting takes place

Design our Christmas card


At Open Day we announced our competition for children to design the Nystagmus Network 2018 Christmas card. Cards will be available to purchase from early November and will help us raise much needed funding for the charity. Ben and Charlotte, Lilly, Jack and Rowan are our current front runners, but there’s still time for you … Continue reading Design our Christmas card

Education Resource HUB – launch


At Open Day 2018 the Nystagmus Network’s volunteer Education Advocate, Frances Lilley, officially launched the charity’s Education Resource HUB. The HUB is the result of years of research and experience and brings together in one place the resources parents and carers need to navigate their way through mainstream education support for a child with nystagmus, … Continue reading Education Resource HUB – launch

The Eye2Eye walk for nystagmus research


In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 … Continue reading The Eye2Eye walk for nystagmus research

Thank you! You were amazing!


Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day. Thank you to all our members and other delegates for supporting Open Day, especially those who travelled long distances and had to get up ridiculously early on a Saturday to … Continue reading Thank you! You were amazing!