A guest post by Gwyn McCormack, Director of Positive Eye: delivering training, courses and a unique product range to support the educational needs of children and young people with vision impairment Gwyn will deliver a ‘Supporting literacy and learning at home using everyday experiences’ workshop at our Open Day on 28 September. Sighted children develop … Continue reading The Market-ness of the Market Place – building concepts through everyday experiences
Do you have the digital know how to take the Nystagmus Network up to the next level? The Nystagmus Network is keen to recruit a new trustee with the right skills set. If you have a connection with nystagmus, have digital experience and expertise, could easily travel to London for quarterly meetings and would be interested in … Continue reading Are you a digital champion?
This guest post is from blogger, Sophie who shares her experience of living, laughing and loving with nystagmus in her blog ‘Nystagmus in a Nut Shell’. Nystagmus and Driving – what’s the real deal? Well, I’ve had experience in this matter, so let me share it with you… Can people with Nystagmus drive? Without a … Continue reading Nystagmus and driving by Sophie
The results are in from our Facebook and Twitter polls and we can finally announce the name of our fabulous ‘Nystagmus is …’ competition winner – drum roll, please … it’s Samantha Keeley. Samantha’s winning description of nystagmus is: “Where you see everything but the one thing you are looking for which was right in … Continue reading And the winner is …
Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes
In the run up to Nystagmus Awareness Day on 20 June, we published lots of your nystagmus success stories in our campaign “How amazing are you?” One of the most popular stories was Roger’s. When Roger first contacted us he began by saying “I have enjoyed Nystagmus for nearly 80 years.” He went on to describe how … Continue reading Nystagmus is …
With thanks to our friends, the Outspan Rebels VI ski team, we’re offering you the chance, this August, to try out skiing for yourself at Snozone Milton Keynes. Menna Fitzpatrick MBE and Jennifer Kehoe MBE will be there on 18 August with their medals. Come and meet them! Children, young people and adults all welcome. Bring … Continue reading Ski with Menna and Jen
Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update
GUEST POST, by Joanne Roughton-Arnold I am a member of the Nystagmus Network. I have ocular albinism with subsequent congenital nystagmus. I am a professional opera singer. Inspired by my recent work singing with the British Paraorchestra, I have started a new opera company formidAbility out of a passionate belief that this extraordinary art form can … Continue reading formidAbility
Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of other teams around the west of Swansea. A great game was had by all with a post match BBQ, cake stall and raffle. Due to … Continue reading Howzat?