Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?
Category: Living with nystagmus
Taylan is a #NystagmusStar
“Taylan is amazing”, says his Mum. “He struggles with his balance and sight but every day he tries his hardest at school and at home. He is kind and friendly … Continue reading Taylan is a #NystagmusStar
Serena is a #NystagmusStar
Serena is a remarkable young person. She had a few medical problems early on in life and has very reduced vision, but her positive outlook means she gets on with … Continue reading Serena is a #NystagmusStar
Rory is a #NystagmusStar
Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles … Continue reading Rory is a #NystagmusStar
Lexi is a #NystagmusStar
Sometimes Lexi gets upset and wishes she could see better, but she carries on. Her mum says: “Lexi is my star. I’m so proud of her. She makes me want … Continue reading Lexi is a #NystagmusStar
Joshua is a #NystagmusStar
Joshua embraces every opportunity and does not let nystagmus stand in his way. If he had the choice to wake up without nystagmus he wouldn’t choose to do so. He … Continue reading Joshua is a #NystagmusStar
Nystagmus and sleep
Parents often report that their children experience problems sleeping and wonder whether there is any connection with nystagmus. Now a team at University College, London is conducting a research study … Continue reading Nystagmus and sleep
#YouMadeItHappen – Delilah
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah
#YouMadeItHappen – Roger
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger
#YouMadeItHappen – Nadine
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine