Eye to Eye – you smashed it!


Huge congratulations and thanks to everyone who turned out on a very blustery Sunday morning to walk 4 or 14 miles around the streets of London to raise money for pioneering nystagmus research at Moorfields and UCL. The final total is still being counted, but we can report that together you have so far raised … Continue reading Eye to Eye – you smashed it!

Fancy a stroll through London?


At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. We’re doing … Continue reading Fancy a stroll through London?

Could you walk from Eye to Eye for nystagmus?


At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. … Continue reading Could you walk from Eye to Eye for nystagmus?

True dedication!


Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. The final 3 of our fabulous team of 10 abseilers finally took their leap for nystagmus, following postponements due to … Continue reading True dedication!

They did it – at last!


The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform of the ArcelorMittal Orbit for nystagmus research. With not a cloud in the sky nor any hint of wind and rain, our intrepid 3 enjoyed … Continue reading They did it – at last!

Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month. For the remaining … Continue reading Nerves of steel!

Walk Eye to Eye for nystagmus research


Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019. The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on … Continue reading Walk Eye to Eye for nystagmus research

The Eye2Eye walk for nystagmus research


In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 … Continue reading The Eye2Eye walk for nystagmus research

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!

Vikki and Tom – our first abseilers


Vikki and her husband, Tom, were the very first to sign up to abseil down from the 262 feet high viewing platform at the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vikki’s family have been members and supporters of the Nystagmus Network for many years. Parents, Peter and Lynne, even organised an entire Open Day one … Continue reading Vikki and Tom – our first abseilers