Jac is running a 2.5k fun run this month to raise awareness of nystagmus and fundraise for the Nystagmus Network. His Mum and Dad didn’t find out Jac had nystagmus … Continue reading How amazing is Jac?
Category: Parent stories
How amazing is Ben?
Ben’s Mum tells us: “I am incredibly proud of my son, Ben who is 10 and has nystagmus. He plays for the under 10s Winslow Tigers football team. Recently he … Continue reading How amazing is Ben?
How amazing is Rocco?
Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report … Continue reading How amazing is Rocco?
A unique way to raise awareness
Vicky is a nystagmus Mum who came up with a really different way to raise awareness of nystagmus in the run up to Nystagmus Awareness Day on 20 June. She … Continue reading A unique way to raise awareness
How amazing is Rylan?
Rylan’s Mum says: “My son Rylan was only diagnosed with nystagmus in Reception at school, although I had always noticed his eyes swinging from side to side. He is just … Continue reading How amazing is Rylan?
How amazing is Alfie?
My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?
How amazing is Ben?
Here’s an amazing story from a very proud mum. When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. … Continue reading How amazing is Ben?
My bouncing eyes baby!
Hello, my name is Charlotte and I am mother to a ridiculously delicious six year old girl named Scarlett. In every way Scarlett is a picture of happiness and joy. … Continue reading My bouncing eyes baby!
An inspiring story about passing exams!
We wanted to begin 2017 by sharing a good news story by Meg Tatton which we hope will inspire other parents and show that there should be no barriers in the … Continue reading An inspiring story about passing exams!
Discovering your baby has nystagmus
My daughter has congenital idiopathic nystagmus. Idiopathic means that despite having every test available no physiological cause can be found. Congenital means that it was either present at birth or … Continue reading Discovering your baby has nystagmus