The Nystagmus Network runs regular virtual get togethers for parents and carers on Zoom. Here’s Sue’s report on the January event, which focused on homeschooling.
It was lovely to see Mums and Dads on the Nystagmus Network Parents’ Forum this month. You’re all doing a great job on the homeschooling front, but I think it’s fair to say we’re all looking forward to some warmer weather, when we can get the children back outside, and to schools reopening, too.
We covered topics including resources, creative activities, down time, eye health and screen use and EHC plans. Here are just a few follow up notes which I hope will be useful.
Homeschool BBC Bitesize – learning resources for all Key Stages and those downloadable timetables
Homeschooling and nystagmus: read Nadine’s blog post
Eye health and screen time Association of Optometrists’ advice on screen time and eye health
Specsavers’ information on children’s eye health and screen time
The 20-20-20 rule explained by Fight for Sight in this BBC article
SEN support at school IPSEA online courses for parents are really helpful with the EHCP process or if you need to prepare an appeal. The next EHCP masterclass for parents is on 9 February and there are lots more online learning opportunities.
The Nystagmus Network offers an education advocacy service for parents who are members of the charity. This is one to one bespoke support provided by our IPSEA trained volunteers, Frances and Claire. Membership subscription is £25 per year. Please let me know if you’d like to be referred to our education advocates.
General information for parents You can download a whole range of information for parents and carers from our website.
Please keep an eye on our Facebook page for all our latest news and information and, if you haven’t already, please join our Facebook group for parents.
And finally … please remember we’re only an email or a phone call away.
I look forward to seeing you at the next parent forum.
If you’d like to join the next Nystagmus Parents’ Forum, please contact us here.
