I am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a clumsy child … Continue reading Angela’s Story
Tag: Our Ruby Year
Vicky’s 1984 Story
My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story
Harshal’s 1984 story
The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story
John’s 1984 Story – The world is my chauffeur
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
Paul’s 1984 Story
Sometimes I really don’t know where the time goes. Back in 1984, it was my first year at secondary school, and my parents were extremely proud of me for getting … Continue reading Paul’s 1984 Story
Marlow’s Story
I was born with nystagmus and multiple other eye conditions. I was put in gymnastics at an early age to help with coordination and balance. This led me into cheerleading … Continue reading Marlow’s Story
Ruby’s Story
When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story
Peter’s 1984 Story
At 12 years old, I was preparing for my first summer Scout camp in Guernsey, which required a 10-hour ferry ride from Weymouth, marking my first time leaving mainland UK. … Continue reading Peter’s 1984 Story
Ava
Ava was born with congenital nystagmus. She loves rugby and swimming. She’s full of life and lets nothing get in her way.
Cohen’s Story
“Cohen was diagnosed with congenital nystagmus when he was around 6 months old. He is now almost 10 years old. Cohen’s cousin was diagnosed with nystagmus a year or … Continue reading Cohen’s Story