Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in his 70s, said he had learned more about nystagmus in those 3 minutes than throughout the rest of his life. We have been contacted by … Continue reading BBC charity appeal raises £8,000
… and our promises to you, the nystagmus community Thanks to your support and generosity throughout 2019, the Nystagmus Network can confidently resolve and promise that in 2020 we will ONE – provide even more support and information for everyone living with CN or AN, their friends and family and the people helping them to … Continue reading Our New Year resolutions
This year for Nystagmus Awareness Day and ‘wobbly week’ the Nystagmus Network is encouraging everyone to take part in parkrun, to get out into your local park and walk or run for nystagmus awareness. You can take part in parkrun just about anywhere in the country, every week of the year. But what better way … Continue reading parkrun for Nystagmus Awareness Day
If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a question about nystagmus. Quiz master, Sandi Toksvig asked “Which sensory organs are affected by the medical condition nystagmus?” The contestant clearly knew his stuff as … Continue reading Nystagmus question on Fifteen to One
The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s services and our contact details so that patients with nystagmus can find us easily for information and support. Eye care and Health Professionals armed with … Continue reading Seeing Beyond The Eyes
On Nystagmus Awareness Day 2018, the Nystagmus Network’s Information and Development Manager, Sue, shared her nystagmus story and explained why it’s so important to continue to raise awareness of nystagmus. Read Sue’s online article here.
I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, … Continue reading How amazing is Freya?
SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win £450? How to enter: Take a photo of yourself holding up your Small Charity Week poster that reads: “I love Nystagmus Network because (and say … Continue reading You could win £450 for the Nystagmus Network
To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication most recently is entitled Wobbly Eyes and explains nystagmus in language a young child can understand. The text is adapted from our free to download … Continue reading Nystagmus Network article published
On national and international Nystagmus Awareness Day, Wednesday 20 June, why not help us really get ‘nystagmus in the open‘ by joining Julian Jackson on one of the final legs of his 1,000 mile Big Blind Walk? On that day Julian will be walking from Helmsdale to Dunbeath in the Scottish Highlands along the A9 … Continue reading Nystagmus in the open and the Big Blind Walk