Perceptions of nystagmus and the impact of the Covid-19 pandemic


Impact of the COVID-19 pandemic on individuals with nystagmusand an exploration of public assumptions about the condition: an electronic questionnaire study The study explored the self-reported impact of the COVID-19 pandemic on those with nystagmus, and examined both public understanding of how nystagmus affects people who have it and the perceptions of public understanding by … Continue reading Perceptions of nystagmus and the impact of the Covid-19 pandemic

Nystagmus isn’t catching – tell your friends!


The little girl in the picture has nystagmus. She is enjoying some drawing at a Nystagmus Network event some years ago. At the time she had just started school and thought it would help children like her if people understood nystagmus better. One of the first things she wanted other children to know was that … Continue reading Nystagmus isn’t catching – tell your friends!

People’s perceptions of nystagmus and the impact of Covid-19


In November 2020, the Nystagmus Network shared news of a new research survey into people’s perceptions of nystagmus. The results have now been published. The responses to the survey show that people with nystagmus tended to predict that the public would not think that the condition affects their daily lifestyle as much as it actually … Continue reading People’s perceptions of nystagmus and the impact of Covid-19

New e-learning course enhances skills when assisting people with sight loss


A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Visual Impairment Awareness for All’ is ideal for anyone who regularly interacts with people living with visual impairment as it … Continue reading New e-learning course enhances skills when assisting people with sight loss

BBC charity appeal raises £8,000


Following transmission of the Nystagmus Network’s Radio 4 appeal, presented by Richard Osman, the charity has received universally positive feedback on the clarity of the broadcast’s message. One listener, in his 70s, said he had learned more about nystagmus in those 3 minutes than throughout the rest of his life. We have been contacted by … Continue reading BBC charity appeal raises £8,000

Our New Year resolutions


… and our promises to you, the nystagmus community Thanks to your support and generosity throughout 2019, the Nystagmus Network can confidently resolve and promise that in 2020 we will ONE – provide even more support and information for everyone living with CN or AN, their friends and family and the people helping them to … Continue reading Our New Year resolutions

parkrun for Nystagmus Awareness Day


This year for Nystagmus Awareness Day and ‘wobbly week’ the Nystagmus Network is encouraging everyone to take part in parkrun, to get out into your local park and walk or run for nystagmus awareness. You can take part in parkrun just about anywhere in the country, every week of the year. But what better way … Continue reading parkrun for Nystagmus Awareness Day

Nystagmus question on Fifteen to One


If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a question about nystagmus. Quiz master, Sandi Toksvig asked “Which sensory organs are affected by the medical condition nystagmus?” The contestant clearly knew his stuff as … Continue reading Nystagmus question on Fifteen to One

Seeing Beyond The Eyes


The Nystagmus Network is pleased to share this guest post from our friends at Visualise Training and Consultancy. The new guide ‘Seeing Beyond The Eyes’ includes details of the charity’s services and our contact details so that patients with nystagmus can find us easily for information and support. Eye care and Health Professionals armed with … Continue reading Seeing Beyond The Eyes