The Nystagmus Network has been investing in research since the 1990s.
Nystagmus academics, clinicians and researchers in Cardiff, Leicester, London, Plymouth, Sheffield and Southampton continue to focus on causes, effects, treatments and quality of life.
In the last 30 years we’ve seen huge advances in the sophistication of diagnostic techniques, with more widespread use of electronic testing providing ever more accurate clues to the causes and likely impact of nystagmus.
Optical, medical and surgical treatments have also been developed to improve both the vision and the quality of life.
There has been much to celebrate.
But, despite some emerging signs of potential early interventions, sadly, prevention and cure still seem a long way off.
We need more research!
To kickstart more nystagmus research, we need two things: money and a good research question.
You can help us!
Tell us which aspect of life with nystagmus you think researchers should examine as a priority to achieve the greatest impact on people living with the condition by submitting your research question today. We will collate all your responses and put them to researchers in a bid to start some new nystagmus research.
Your research question should be:
- Focused on a single aspect of life with nystagmus
- Researchable using primary and/or secondary sources
- Feasible to answer within a reasonable timeframe
- Specific enough to answer thoroughly
- Complex enough to attract academic interest
- Relevant to the lives of people living with nystagmus
Please use the form below to submit your nystagmus research question.
The deadline for submissions is 31 March
Alternatively, you can make a donation to the Nystagmus Network research fund to help us continue to push the boundaries of scientific investigation.
