We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in His Majesty’s New Year’s Honours List.
How could Vivien have guessed, as she sat in 1984 at her kitchen table stuffing envelopes with information leaflets about nystagmus for other parents just like her, whilst her infant son, Sam newly diagnosed with nystagmus, slept upstairs in his cot, that 40 years later she would be at the helm of a national charity, leading the way in nystagmus research, awareness, support and information.
It is a fitting testament to Vivien’s hard work and dedication to the nystagmus cause that she receives her honour so soon after celebrating the charity’s 40th anniversary, its Ruby Year.
Our warmest congratulations, sincerest thanks and love to Vivien from everyone at the Nystagmus Network.
