Vivien holds her MBE with family members beside her.

Vivien receives her honours


Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled … Continue reading Vivien receives her honours

Vivien with her guests at the Ruby Year celebration at the House of Lords in November 2024.

A New Year honour for Vivien, founder of the Nystagmus Network


We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network