I am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a clumsy child … Continue reading Angela’s Story
Category: Living with nystagmus
It’s nearly Nystagmus Awareness Day 2024
Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you need. There’s the great … Continue reading It’s nearly Nystagmus Awareness Day 2024
Vicky’s 1984 Story
My favourite subjects at secondary school in 1984 were hockey, music and maths. Fast forward 40 years and those subjects still dominate my life. Professionally I’m Finance Director for an … Continue reading Vicky’s 1984 Story
Harshal’s 1984 story
The year was 1984 and in a little corner of Middlesex, a baby boy was just starting to explore the world, especially a local park that our family home shared … Continue reading Harshal’s 1984 story
John’s 1984 Story – The world is my chauffeur
We belong to many tribes, often overlapping, during our lives. The story of my nystagmus tribe starts in 1984. In particular, the day I first met others with nystagmus and … Continue reading John’s 1984 Story – The world is my chauffeur
Kathryn’s 1984 story
In September 1984 I started my training as an orthoptist at Moorfields Eye Hospital School of Orthoptics. Back then orthoptic training was a three-year diploma course for which students received … Continue reading Kathryn’s 1984 story
Walk with us
On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. Spending time outside with … Continue reading Walk with us
Paul’s 1984 Story
Sometimes I really don’t know where the time goes. Back in 1984, it was my first year at secondary school, and my parents were extremely proud of me for getting … Continue reading Paul’s 1984 Story
Marlow’s Story
I was born with nystagmus and multiple other eye conditions. I was put in gymnastics at an early age to help with coordination and balance. This led me into cheerleading … Continue reading Marlow’s Story
Ruby’s Story
When Ruby was 9 months old I noticed one of her eyes shaking, which prompted me to visit our local optician. They informed me that they didn’t treat children that … Continue reading Ruby’s Story