The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform of the ArcelorMittal Orbit for nystagmus research. With not a cloud in the sky nor any hint of wind and rain, our intrepid 3 enjoyed … Continue reading They did it – at last!
Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day. Thank you to all our members and other delegates for supporting Open Day, especially those who travelled long distances and had to get up ridiculously early on a Saturday to … Continue reading Thank you! You were amazing!
Last Sunday Bronagh and Susan completed the Spartan Scotland 2018 challenge for the Nystagmus Network. That’s a lot of running, a lot of obstacles and an awful lot of mud. But they did it – in just 3 hours. Well done and thank you to both of them from everyone at Nystagmus Network. You can … Continue reading Well done, Bronagh and Susan!
Harry and his family raised over £1,000 for the Nystagmus Network last weekend by taking part in a sponsored fun triathlon. What a phenomenal achievement! Well done, Harry! To sponsor Harry, please click here. Or why not take on your own summer challenge and help us raise more money for nystagmus support and research?
The Nystagmus Network is hugely grateful to King Cross Surgery in Halifax for their amazing support on Nystagmus Awareness Day 2018. Practice Manager, Heather, whose 8 year old son has nystagmus, says: “The Network was and is an invaluable resource to us as new parents, to understand his condition and how it may affect him … Continue reading Thank you, King Cross Surgery!