Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month. For the remaining … Continue reading Nerves of steel!

Walk Eye to Eye for nystagmus research


Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019. The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on … Continue reading Walk Eye to Eye for nystagmus research

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support … Continue reading Nystagmus Patient Information Day

The Eye2Eye walk for nystagmus research


In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 … Continue reading The Eye2Eye walk for nystagmus research

Vanessa and Richard complete their abseil


Vanessa and Richard were away on holiday when they heard that the Nystagmus Network were looking for people to abseil down the UK’s tallest piece of public art to raise money for nystagmus research at Moorfields and UCL. They signed up straight away. The big day came, but the weather was certainly not what they’d … Continue reading Vanessa and Richard complete their abseil

They did it!


Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then. Congratulations, Vicki and Tom! You’re … Continue reading They did it!

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!

Matt is joining the abseil


Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is joining Team Nystagmus Network Abseil at the suggestion of his wife and for his young son, Owen, who has nystagmus. Apparently, some of Matt’s sponsors … Continue reading Matt is joining the abseil

Vicky and Claire show amazing support


Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common! On 23 September they will both be scaling down the Olympic Park Orbit alongside their Team Nystagmus Network Abseil team mates. They’re doing it to raise funding for nystagmus research. Every penny they raise will go directly into … Continue reading Vicky and Claire show amazing support

Glen’s taking the abseil challenge. Could you?


Glen is a member of the Nystagmus Network and a true friend of the charity. We were privileged to meet him last year when he led a workshop at Open Day on building social networks. You can read all about Glen’s adventures as a successful young man about London, who just happens to have aniridia … Continue reading Glen’s taking the abseil challenge. Could you?