#YouMadeItHappen – Delilah


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story for our Jeans for Nystagmus Genes Day campaign, helping us raise awareness of nystagmus as a genetic disorder. Thank you, Delilah You can read Delilah’s … Continue reading #YouMadeItHappen – Delilah

#YouMadeItHappen – Roger


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new guide to nystagmus – for adults. He generously shared his own thoughts on the subject to start us off and members of our community chipped … Continue reading #YouMadeItHappen – Roger

#YouMadeItHappen – Nadine


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter to grow up in a world where people didn’t know about nystagmus, so she wrote her book ‘Can I tell you about Nystagmus?’ which explains … Continue reading #YouMadeItHappen – Nadine

#YouMadeItHappen – Patsy


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s thanks to her that we were able to start up our virtual support group for people diagnosed with Acquired Nystagmus. Living with AN herself, Patsy … Continue reading #YouMadeItHappen – Patsy

#YouMadeItHappen – Bronagh and Susan


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Bronagh and Susan – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Bronagh and Susan

#YouMadeItHappen – James and Thomas


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 James and Thomas – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – James and Thomas

#YouMadeItHappen – Clare


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Clare – you helped make that happen! Today the whole nystagmus community says than you to you.

#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Harry


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Harry – you helped make that happen! Today the whole nystagmus community says thank you to you.