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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Albinism Awareness Day


We join our sister charity, Albinism Fellowship UK, today in celebrating Albinism Awareness Day, with a special guest blog post from AFUK Chair, Roselle Potts. Help us to raise positive … Continue reading Albinism Awareness Day

Posted on June 13, 2018June 14, 2018Author Sue RickettsCategories Guest postsTags AFUK, albinism

How amazing is Rosine?


Hi there. I just wanted to share with you the amazing journey I’ve embarked on in Blind Tennis, a sport that has given me my freedom, my independence and my … Continue reading How amazing is Rosine?

Posted on June 11, 2018Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, tennis, ZING

How amazing is Charlie?


I’m Charlie, I’m 14 years old and live in Lincoln. I live with my parents, my brother and sister. I’m currently studying for my GCSEs. I would love to do Maths, Psychology … Continue reading How amazing is Charlie?

Posted on June 10, 2018June 9, 2018Author Sue RickettsCategories Guest posts, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Matt?


Matt has nystagmus, but, as his Mum tells us, he is on the road to a stellar career. Matt is currently the director / choreographer for a production of Joseph … Continue reading How amazing is Matt?

Posted on June 9, 2018June 9, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

Open Day tickets for members – available soon


Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets … Continue reading Open Day tickets for members – available soon

Posted on June 9, 2018June 9, 2018Author Sue RickettsCategories Charity highlights, Events, Open Day 2018Tags David Katz, Marsha de Cordova, Open Day

How amazing is Katrina?


Katrina thinks she’s just a regular student who happens to have nystagmus – we think she’s an amazing nystagmus ambassador! Here’s Katrina’s nystagmus story … I am 19 years old. … Continue reading How amazing is Katrina?

Posted on June 9, 2018Author Sue RickettsCategories Charity highlights, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, Big Blind Walk, ZING

The anatomy of the eye


Need a handy guide to how the eye works and what all the parts are called? This great guide from our friends at Fight for Sight will help you understand … Continue reading The anatomy of the eye

Posted on June 8, 2018Author Sue RickettsCategories Information and SupportTags anatomy of the eye, Fight for Sight

How amazing is Rocco?


Rocco is 6 years old. He has Ocular Albinism and nystagmus, he also has other disabilities, but, for the first time in his life, his parents have got a report … Continue reading How amazing is Rocco?

Posted on June 7, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags albinism, amazing nystagmus success stories, nystagmus, ZING

A unique way to raise awareness


Vicky is a nystagmus Mum who came up with a really different way to raise awareness of nystagmus in the run up to Nystagmus Awareness Day on 20 June. She … Continue reading A unique way to raise awareness

Posted on June 7, 2018June 6, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent stories

How amazing is Mehak?


Growing up with nystagmus and albinism, I hated school and social interaction. I was always self-conscious and easily embarrassed that my weak eyesight, poor balance and hypersensitivity to sunlight made … Continue reading How amazing is Mehak?

Posted on June 6, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

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