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Nystagmus Network

Supporting people living with nystagmus

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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

You could win £450 for the Nystagmus Network


SMALL CHARITY WEEK begins on Monday 18 June. If the Nystagmus Network is your favourite small charity, why not enter the Facebook, Twitter or Instagram competition to help us win … Continue reading You could win £450 for the Nystagmus Network

Posted on May 24, 2018May 25, 2018Author Sue RickettsCategories Posts, Small Charity WeekTags #ILoveSmallCharities, awareness, nystagmus, Small Charity Week

Manchester half marathon places available


Would you like to run the Manchester half marathon this October to raise money for the Nystagmus Network? The race takes places on Sunday 14 October. It starts and finishes by … Continue reading Manchester half marathon places available

Posted on May 24, 2018May 24, 2018Author Sue RickettsCategories FundraisingTags free run places, fundraising, Manchester half marathon, nystagmus

Sam to run London 10k for the Nystagmus Network


Sam Jones, Nystagmus Network trustee and runner, introduces himself. I was born in 1983 with Cone Dysfunction and Nystagmus. Because of me, my mother, Vivien Jones, founded the Nystagmus Network. … Continue reading Sam to run London 10k for the Nystagmus Network

Posted on May 23, 2018May 24, 2018Author Sue RickettsCategories FundraisingTags London Vitality 10k

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes

Sponsors sought for Open Day 2018


The biggest nystagmus event of the year takes place on Saturday, 29 September in Birmingham. This is our annual Open Day, where 200 nystagmus families get together to talk about … Continue reading Sponsors sought for Open Day 2018

Posted on May 8, 2018Author Sue RickettsCategories Events, Open Day 2018Tags nystagmus, nystagmus network, Open Day, sponsorship

Open Day 2018 – members only tickets available from 28 June


Priority booking for free places at our Open Day 2018 will open to members of the Nystagmus Network at midday on Thursday 28 June. Remaining tickets will go on general … Continue reading Open Day 2018 – members only tickets available from 28 June

Posted on May 4, 2018Author Sue RickettsCategories Open Day 2018Tags members, priority

Fight for Sight partners with the Nystagmus Network for its next grant round


Fight for Sight has today announced a call for Small Grant Award applications. The UK’s leading eye research charity is this year able to offer thirteen awards to fund sight … Continue reading Fight for Sight partners with the Nystagmus Network for its next grant round

Posted on May 1, 2018Author Sue RickettsCategories researchTags Fight for Sight, nystagmus, quality of life, research grants

Sign up for the “Nystagmus in the Open” thunderclap!


At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take … Continue reading Sign up for the “Nystagmus in the Open” thunderclap!

Posted on May 1, 2018Author Sue RickettsCategories Charity highlights, Events, Nystagmus Awareness DayTags Facebook, thunderclap, Twitter

Sue attends APPG meeting on eye research


Sue attended a meeting yesterday at the House of Commons of the All Party Parliamentary Group for Eye Health and Visual Impairment. The subject of the meeting was eye research. … Continue reading Sue attends APPG meeting on eye research

Posted on April 26, 2018Author Sue RickettsCategories researchTags nystagmus, nystagmus research
A child swimming underwater.

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?

Posted on April 26, 2018May 4, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags adult, amazing nystagmus success stories, children, fundraising, living with nystagmus, nystagmus

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