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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

How amazing is Rylan?


Rylan’s Mum says: “My son Rylan was only diagnosed with nystagmus in Reception at school, although I had always noticed his eyes swinging from side to side. He is just … Continue reading How amazing is Rylan?

Posted on June 5, 2018June 5, 2018Author Sue RickettsCategories Fundraising, Nystagmus Awareness Day, Parent storiesTags amazing nystagmus success stories, nystagmus, ZING

Guest post from Marcus at Tate Britain


This is a message from Marcus at Tate in which I tell you about our forthcoming Audio Description events at Tate Britain, this month and next. Tate Britain, Monday 18th June … Continue reading Guest post from Marcus at Tate Britain

Posted on June 5, 2018Author Sue RickettsCategories Events, Guest postsTags audio description, Tate Britain

Marsha De Cordova MP on nystagmus


We are delighted to be able to welcome Marsha De Cordova MP, Shadow Minister for Disabilities, as our keynote speaker at this year’s Open Day in September. As a sneak … Continue reading Marsha De Cordova MP on nystagmus

Posted on June 5, 2018Author Sue RickettsCategories Events, Open Day 2018Tags living with nystagmus, Marsha de Cordova, nystagmus

How amazing is Suzanne?


I wanted to share my story to show people with nystagmus that it doesn’t have to stop you from fulfilling your dreams. I was born with nystagmus and my parents … Continue reading How amazing is Suzanne?

Posted on June 4, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, ZING

How amazing is Alfie?


My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to … Continue reading How amazing is Alfie?

Posted on June 3, 2018June 2, 2018Author Sue RickettsCategories Fundraising, Nystagmus Awareness Day, Parent storiesTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Hannah?


When I first started school I really struggled to read. It took me months and months to read the first Harry Potter book for myself in large print. I got … Continue reading How amazing is Hannah?

Posted on June 2, 2018June 2, 2018Author Sue RickettsCategories Fundraising, Living with nystagmus, Nystagmus Awareness DayTags amazing nystagmus success stories, nystagmus, ZING

How amazing is Ben?


Here’s an amazing story from a very proud mum. When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. … Continue reading How amazing is Ben?

Posted on June 1, 2018Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags amazing nystagmus success stories, ZING

How amazing is Freya?


I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to … Continue reading How amazing is Freya?

Posted on June 1, 2018June 1, 2018Author Sue RickettsCategories Fundraising, Nystagmus Awareness DayTags amazing nystagmus success stories, awareness, fundraising, nystagmus, ZING
A cup cake with a paper flag bearing the Nystagmus Network logo.

Caaaaaaaaaaaake!!!


There are bound to be loads of bake sales for Nystagmus Awareness Day 2018 on 20 June, so we thought it would be a great idea to have some Nystagmus … Continue reading Caaaaaaaaaaaake!!!

Posted on May 30, 2018Author Sue RickettsCategories Events, Fundraising, Nystagmus Awareness DayTags cake, flags, nystagmus

Snow Camp VIPs


If you’ve signed up for the first Snow Camp of 2018, on 17 June, here’s a little taster of what to expect on the day. There’ll be skiing and sledging … Continue reading Snow Camp VIPs

Posted on May 30, 2018June 13, 2018Author Sue RickettsCategories EventsTags nystagmus, skiing, Snow Camps 2018

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