Just say yes to Cardiff – tickets now on general sale.


The Nystagmus Network is delighted to announce the destination and spectacular venue for this year’s Open Day on Saturday 28 September.

The Principality Stadium, Cardiff

Join us in the Millennium Lounge for this year’s inspirational talks and presentations and meet up with adults, parents, children and young people affected by nystagmus over lunch on the Riverside Terrace.

We have secured an incredible line up of keynote speakers, guest presenters, researchers, clinicians, our education advocates and benefits adviser, plus an expert on driving and nystagmus from the DVLA, to make sure that each and every one of our delegates gets the most out of their day with us.

Download the full Open Day 2019 programme by clicking here.

Our keynote speaker to introduce Open Day is entrepreneur, Daniel Williams. Our headline speaker to round off the day is singer songwriter, Ben Haynes. We shall also be joined by the author of the 2019 children’s book on nystagmus, Nadine Neckles.

Researchers, academics and clinicians working in the field of nystagmus research, diagnostics and treatment from Cardiff, Leicester, London, Plymouth and Southampton will be there. Hear first hand about the very latest developments and join them in the Research HUB to chat with them one to one, try out the latest equipment and ask them anything you like.

There’s a ‘Supporting literacy and learning at home using everyday experiences’ workshop with Gwyn McCormack from Positive Eye. This is a practical workshop.

For parents, there’s a chance to ask all those burning questions and speak openly about bringing up a child with nystagmus, thanks to our fabulous mother and daughter team, Jules and Hannah.

If you’re having issues with employment, we’ve a workshop on nystagmus in the workplace, the hidden disability.

Our IPSEA trained volunteer education advocates, Frances and Claire will be there, running workshops to answer all your questions about special education support in England, joined this year by experts in English and Welsh special education law from Sinclairslaw, Cardiff.

Mike, our volunteer benefits adviser will be there to help you through DLA and PIP applications and appeals and answer all your questions about nystagmus and benefits and Hannah will be with us to talk about nystagmus, the hidden disability in the workplace.

Speakers from Specsavers Low Vision Services and Welsh Council for the Blind will be joining us, too, alongside a team of ECLOS (Eye Clinic Liaison Officers) who will highlight the support services they are able to offer to anyone living with nystagmus in England and Wales.

For accompanied children aged 5 to 15 there are optional fun, team building activities. Children under 5 are welcome, but there will be no creche, so parents will need to supervise their young ones and keep them with them at all times, please.

There will also be lots of opportunities for networking with other parents, young people and adults living with nystagmus to share experiences, hints and tips and form connections.

Priority booking for members only opened on 3 June. Member places are free of charge.

Space is limited. Remaining places are now on general sale. Ticket prices are £32 per adult, £10 per child. The price is set to cover refreshments and lunch.


To see the highlights of Open Day 2018, please watch this video.

To see pictures of Open day 2018 …

Go to this Sway