Open Day 2019 – the highlights


Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights

Only Ben can make this world right


Vision impaired singer songwriter, Ben Haynes, will be headlining at the Nystagmus Network Open Day 2019 on Saturday 28 September. Meet Ben. Hear him talk about his early days as a young person with nystagmus, playing drums in the garage until his big break into music. Ben will also play a live acoustic set for … Continue reading Only Ben can make this world right

Please vote for Ben


Ben Haynes is a talented young musician who just happens to have albinism and nystagmus. Ben has entered a music competition and needs your vote. We’ll let Ben explain … Hi everyone. I’m a self employed musician from Nottingham with Albinism and Nystagmus. I performed a few songs at the Nystagmus Network Open day in … Continue reading Please vote for Ben