Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights
Thank you to everyone who made the Nystagmus Network Open Day 2019 such a success and thank you to each and everyone who said yes to Cardiff. We’ll be doing it all again next year on Saturday 3 October. The location and venue are still to be decided but you can put the date in … Continue reading Thank you and good-bye!
And finally, we welcome to the stage singer/songwriter, Ben Haynes. Ben knows only too well what it’s like growing up with nystagmus and albinism, but it hasn’t stopped him from pursuing a career in music. You can hear Ben’s latest single, here.
Whilst everyone else has been enjoying their tea, young Oliver Mitchell has been tuning up his vocal chords and is about to welcome us back into the Millennium Lounge with his rendition of “Danny Boy” in a respectful nod to our charity patron, Sir James Galway. Well done, Oliver!
We may not be celebrating the 25th anniversary of our friendship quite yet, but, to the tune of “I’ll be there for you” by the Rembrandts we now welcome to the lectern 2 of the Nystagmus Network’s very best friends, Joanne Green, Head of Events and Fundraising at Moorfields Eye Charity and Rubina Ahmed, Head … Continue reading Friends!
We’re hearing from our speakers this afternoon about all the services available across the UK for people living with impaired vision and those supporting someone who has a vision impairment. Representatives of all of these services are here today in our exhibition space, ready to help wherever they can. Meanwhile, the children are enjoying a … Continue reading A round up of low vision services across England and Wales
We welcome Nadine Neckles, author of this year’s fabulous new book “Can I tell you about Nystagmus?”. Nadine will be telling us all about her book and her experiences of parenting a young child with nystagmus. At tea time she will be signing copies of her book. Buy your copy, here.
It’s lunch time in Cardiff, but that doesn’t mean it’s time to sit back and relax. There’s so much to see and do and so many people to meet. Dr Gareth Rees is here from DVLA, ready to answer all our delegates’ questions about nystagmus and driving. There are education and benefits drop ins taking … Continue reading So much to see and do
Gwyn McCormack is the Founder of Positive Eye, an award winning teacher training provider, working to support children with special educational needs and impaired vision. Today Gwyn is introducing us to her character, Marvin and showing parents how to support their children’s learning and development using simple, everyday objects and tasks. Elsewhere, Hannah-Elisabeth Ricketts is … Continue reading Gwyn introduces us to Marvin
There is a strong emphasis on education and, in particular, SEN support for children with nystagmus today in Cardiff. Next to the stage are Nystagmus Network trustees and volunteer education advocates, Frances Lilley and Claire Brinn. Following close on their heals is Michael Charles from Sinclairs Law, Cardiff. Mike and his colleague, Kevin, are here … Continue reading Education, education, education