Free Open Day places for Cardiff families

The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The event takes place on Saturday 28 September at the Principality Stadium, Cardiff. If you or someone you know would benefit from attending this event, please … Continue reading Free Open Day places for Cardiff families

Let’s talk about driving at Open Day

Following the changes, earlier this year, to requirements around nystagmus and driving in the UK, we have asked a medical expert from the DVLA to come along to Open Day 2019 to answer all your questions. Dr Gareth Rees will join us in Cardiff to lead an informal question and answer session, so whether you’re … Continue reading Let’s talk about driving at Open Day

Join Frances at Open Day

The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day

Meet Gwyn at Open Day

Gwyn McCormack founded Positive Eye in 2008 after many years as a teacher, first in mainstream secondary school and then as a Qualified Teacher of Vision Impairments in a peripatetic support service. She also spent five years managing a local authority peripatetic support service for children with vision impairments before leaving to set up Positive … Continue reading Meet Gwyn at Open Day

Referrals change lives

In a recent article published by Vision UK, Founder of Visualise Training and Consultancy, Daniel Williams, discusses the importance of referring patients from the hospital eye clinic or High Street optician’s on to local or national services offering condition specific support and information. It’s time for your regular appointment at your local high street optician. … Continue reading Referrals change lives

The nystagmus research HUB is back!

Launched at Open Day 2018, the nystagmus research HUB will back back at Open Day 2019, giving delegates the opportunity to chat one to one with the UK’s leading nystagmus researchers and clinicians, try out equipment, volunteer for research trials and ask anything they want. The HUB will be open throughout the event, so don’t … Continue reading The nystagmus research HUB is back!

Daniel’s a man on a mission

Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers and employees. Founder of Visualise Training, Daniel is working hard to convince the business world one company at a time. Members of the Nystagmus Network … Continue reading Daniel’s a man on a mission

Nystagmus research conference 2019

The Nystagmus Network will once again be hosting a UK nystagmus research conference in 2019. Following the success of last year’s event, attended by research and clinical teams from the Universities of Cardiff, Sheffield, Plymouth and Southampton and from Moorfields Eye Hospital and Fight for Sight, the charity will be funding a further event with … Continue reading Nystagmus research conference 2019

Research into albinism could be good news for babies born with nystagmus

Dr Helena Lee from the University of Southampton was happy to announce this week the publication of a first paper from the OLIVIA study which shows the potential for L-DOPA treatment to improve the vision in albinism. This means that the sight of newborn babies with ocular albinism could potentially continue to develop and improve … Continue reading Research into albinism could be good news for babies born with nystagmus