Daniel’s a man on a mission


Man on a Mission with Low Vision, visually impaired entrepreneur Daniel Williams is working to raise awareness of the value to business of meeting the needs of visually impaired customers and employees. Founder of Visualise Training, Daniel is working hard to convince the business world one company at a time. Members of the Nystagmus Network … Continue reading Daniel’s a man on a mission

Nystagmus research conference 2019


The Nystagmus Network will once again be hosting a UK nystagmus research conference in 2019. Following the success of last year’s event, attended by research and clinical teams from the Universities of Cardiff, Sheffield, Plymouth and Southampton and from Moorfields Eye Hospital and Fight for Sight, the charity will be funding a further event with … Continue reading Nystagmus research conference 2019

Research into albinism could be good news for babies born with nystagmus


Dr Helena Lee from the University of Southampton was happy to announce this week the publication of a first paper from the OLIVIA study which shows the potential for L-DOPA treatment to improve the vision in albinism. This means that the sight of newborn babies with ocular albinism could potentially continue to develop and improve … Continue reading Research into albinism could be good news for babies born with nystagmus

Just say yes to Cardiff!


The Nystagmus Network is delighted to reveal the destination and spectacular venue for this year’s Open Day on Saturday 28 September. We shall once again be coming to Wales. Space has been reserved at the iconic Principality Stadium, Cardiff. Join us in the Millennium Lounge for this year’s inspirational talks and presentations and meet up … Continue reading Just say yes to Cardiff!

Only Ben can make this world right


Vision impaired singer songwriter, Ben Haynes, will be headlining at the Nystagmus Network Open Day 2019 on Saturday 28 September. Meet Ben. Hear him talk about his early days as a young person with nystagmus, playing drums in the garage until his big break into music. Ben will also play a live acoustic set for … Continue reading Only Ben can make this world right

Introducing Daniel


Daniel Williams is our keynote speaker at Open Day 2019. Daniel is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers. Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says: “I am passionate about disability rights and making mainstream services accessible to all, enabling … Continue reading Introducing Daniel

Meet Nadine at Open Day


Author of the 2019 book ‘Can I tell you about Nystagmus?’ will be at the Nystagmus Network Open Day on Saturday 28 September. Amber, the leading character in Nadine’s book, was inspired by her daughter, who has nystagmus. At Open Day Nadine will be happy to chat with parents and share experiences of parenting a … Continue reading Meet Nadine at Open Day

Can I tell you about nystagmus?


The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a child’s point of view and provides insights for parents and professionals alike. Nadine is a friend of the Nystagmus Network and previously contributed an article … Continue reading Can I tell you about nystagmus?