Tag: adults

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Want to meet up?

You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020.

Because we know that one of the ‘best bits’ of Open Day is meeting up with others, we’re holding a series of online forums to help you do just that.

In August and September, we’ll be hosting some great opportunities for you to network and chat with other people living with nystagmus or other parents.

Parents’ Forum
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to network, chat and ask all your burning questions.

Thursday 13 August at 7.30pm
Parents sign up here
Adults’ Forum
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to meet up and share notes with other adults living with nystagmus.

Thursday 27 August at 6pm
Adults sign up here
Acquired Nystagmus Group  – meet the expert
A zoom meet up led by Nystagmus Network staff and volunteers. Your chance to hear an expert speak about acquired nystagmus and ask questions.

Date and Time to be confirmed
Acquired Nystagmus sign up here

What to expect from a visit to an Orthoptist

Orthoptists are trained specialists in diagnosing and providing non-surgical management of disorders of eye movements and associated vision defects.

BIOS, the British and Irish Orthoptic Society, has produced a series of guides to talk you through a typical visit to an Orthoptist. Please click the links below to see your chosen guide.

For people with learning disabilities or autism please select below

Nystagmus Patient Information Day

The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November.

Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available.

The structure of the day will involve:

  • An overview of nystagmus and current management
  • A patient journey
  • Interactive discussion focusing on the needs of the patient
  • Talks from Visual Impairment and Low Visual Aids teams

Sue, from the Nystagmus Network, will be at the event.

Lunch and coffee will be provided, and places (free of charge) will be allocated on a first come, first served basis.

Tickets close: midnight Friday 9 November

For enquires please contact Maria Theodorou at: [email protected].

This day is funded by Friends of Moorfields with support from Nystagmus Network.

We will not be discussing children services at this meeting. Some of the content and discussions had may not be suitable for children. We are unable to offer childcare facilities on the day.

To book your place, please click here.

The event is hosted by NIHR Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology.