Thank you to everyone who joined us for the Nystagmus Network February Forum for Adults living with Acquired Nystagmus and Oscillopsia. Patsy’s story, a case study of AN and Oscillopsia Our lovely volunteer, Patsy introduced the work she has been doing, putting together a case study of her AN and Oscillopsia journey to support the … Continue reading Notes from the February Forum for adults living with Acquired Nystagmus and Oscillopsia
With people joining us from both sides of the Atlantic, there was some very interesting discussion at the most recent Nystagmus Network forum for adults with Acquired Nystagmus and Oscillopsia. Symptoms It is always reassuring, particularly for new members of the group, to hear the wide range of symptoms others are experiencing. These range far … Continue reading Notes from the January AN/Oscillopsia Forum
The Nystagmus Network runs a virtual support group where people living with Acquired Nystagmus and/or Oscillopsia chat together on email and on zoom to share their experiences and try to find answers together. If you’re living with AN or oscillopsia and would like to join the group, you’d be most welcome. At our recent virtual Open Day we were … Continue reading Living with Acquired Nystagmus and Oscillopsia?
We need you! The Nystagmus Network is supporting Professor Chris Harris and his team at the Royal Eye Hospital, Plymouth to investigate further Acquired Nystagmus and Oscillopsia. If you have either or both, we’d love to hear from you. You can help us develop a further research study into these complex, life changing conditions. We … Continue reading Do you have Acquired Nystagmus or Oscillopsia?
As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October. For parents There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus. Please contact … Continue reading Come along to the forum
Nystagmus researcher and clinician from the Royal Eye Infirmary, Plymouth, Professor Chris Harris, will be talking about the causes, potential treatment and his further research into Acquired Nystagmus and Oscillopsia at the Nystagmus Network virtual Open Day 2020. You can hear this and all the other presentations by registering now for the Nystagmus Network virtual … Continue reading Chris addresses Acquired Nystagmus and Oscillopsia
You’re warmly invited to join us for one or more of our upcoming forums in the run up to Open Day 2020. Because we know that one of the ‘best bits’ of Open Day is meeting up with others, we’re holding a series of online forums to help you do just that. In August and September, we’ll … Continue reading Want to meet up?
Many people who have acquired nystagmus experience oscillopsia from time to time. This is where they see a moving image of the world around them, rather than a still one. People with congenital nystagmus can also, occasionally, see objects moving around when they are not. A new article, published online by Medical News Today, details … Continue reading A new article on oscillopsia
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s thanks to her that we were able to start up our virtual support group for people diagnosed with Acquired Nystagmus. Living with AN herself, Patsy … Continue reading #YouMadeItHappen – Patsy
An article recently published online by Everyday Health, discusses the effects of acquired nystagmus on an individual’s ability to drive. The author is an American citizen, living in New York State, but her description of the way in which nystagmus is affecting her sight will resonate with a lot of people. For guidance on nystagmus … Continue reading Acquired nystagmus, MS and driving