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Tag: children

What to expect from a visit to an Orthoptist


Orthoptists are trained specialists in diagnosing and providing non-surgical management of disorders of eye movements and associated vision defects. BIOS, the British and Irish Orthoptic Society, has produced a series … Continue reading What to expect from a visit to an Orthoptist

Posted on January 16, 2020January 16, 2020Author Sue RickettsCategories Information and SupportTags adults, BIOS, children, Orthoptist

A new RNIB guide to outdoor play


The Royal National Institute for the Blind (RNIB) has recently released a new guide, Messy and Muddy, which explores outdoor play for children living with sight loss. The new guide … Continue reading A new RNIB guide to outdoor play

Posted on April 17, 2019April 17, 2019Author Sue RickettsCategories Information and Support, Living with nystagmusTags children, outdoor play, RNIB

Children’s health: why vision matters


When an infant is diagnosed with nystagmus, it’s very important to ensure that the child continues to have regular sight tests and check ups to make sure that other problems … Continue reading Children’s health: why vision matters

Posted on August 28, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags Association of Optometrists, children, sight testing, UK Vision Strategy

Nystagmus Network article published


To achieve our objective of raising greater awareness of nystagmus, the charity publishes articles from time to time on different aspects of the condition. The article we submitted for publication … Continue reading Nystagmus Network article published

Posted on May 22, 2018Author Sue RickettsCategories Information and Support, Living with nystagmusTags article, awareness, children, nystagmus, publications, Wobbly Eyes
A child swimming underwater.

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last … Continue reading How amazing are you?

Posted on April 26, 2018May 4, 2018Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags adult, amazing nystagmus success stories, children, fundraising, living with nystagmus, nystagmus

Nystagmus Awareness Day – for snow men!


Whilst we are all looking forward to the very first Nystagmus Awareness Day in the summer – on Wednesday 20 June – for those of you who miss the old … Continue reading Nystagmus Awareness Day – for snow men!

Posted on April 18, 2018Author Sue RickettsCategories Events, Living with nystagmus, Nystagmus Awareness DayTags adult, children, living with nystagmus, nystagmus, nystagmus network, Outspan Rebels VI ski team, skiing

Explaining nystagmus to a child


Parents often wonder when is the right time to talk to their children about nystagmus and what words to use. Our free to download booklet “Wobbly Eyes” can help. Covering … Continue reading Explaining nystagmus to a child

Posted on February 12, 2018Author Sue RickettsCategories Information and SupportTags children
Hana's daughter

I’m the parent I never thought I’d be


I had always planned on being a laid back parent. My son, born with perfect vision, had been a breeze. And then my daughter entered school. Even though she had … Continue reading I’m the parent I never thought I’d be

Posted on April 4, 2016April 1, 2016Author Guest AuthorCategories Parent stories, PostsTags children, Focus, nystagmus, parent
George and his mum

George has nystagmus – goodbye!


My son, George, has congenital idiopathic nystagmus. The terminology may be familiar to ophthalmologists, but it’s baffling to anyone else. In George’s case, no one can identify a cause. So … Continue reading George has nystagmus – goodbye!

Posted on March 30, 2016April 1, 2016Author Guest AuthorCategories Parent stories, PostsTags children, Focus, nystagmus

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