How amazing is Alfie?

My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to ride his bike last year and got one for his 9th Birthday. He is going to be sitting the 11+ this September because he is determined to get a place at Grammar School. He has just been on his third skiing holiday and was told by his instructor that he should start training to become a Paralympian!

How amazing is Ben?

Here’s an amazing story from a very proud mum.

When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. After nearly a year of waiting, research and MRI scans he was diagnosed with Congenital Nystagmus.
We weren’t sure how this would affect him and it has all been a guessing game.
Ben’s just had a great year at nursery and we’re getting ready for him to start P1 in September. He has developed great and hasn’t let it stop him.
Such a positive, caring boy who’s had so many hospital and doctor appointments, any other child wouldn’t stick it.

How amazing is Freya?

I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, because of the way my brain is seeing the words. I was offered support sessions to look at alternative methods of learning. I then went on to university and this year I am graduating! I have studied law for the past three years and in September will be going on to train as a barrister. I anticipate many challenges due to nystagmus such as mock court situations. Reading facial expressions and looking at evidence may be challenging, but nystagmus won’t stop me.

 

 

A child swimming underwater.

How amazing are you?

Have you done something amazing, something you never thought possible, because you have nystagmus?
Has your child exceeded all your expectations?
If so, we want to hear from you.
Last year we heard about the fantastic swimming and fundraising achievements of Annabelle, Tyler and Poppy. This year we want to hear your stories.
Between now and 20 June, Nystagmus Awareness Day, we’re collecting all those lovely stories of adults and children who’ve achieved great things despite having nystagmus, or maybe even because they do.
We’ll feature all the best stories right here on our blog and on our Facebook page, so everyone can celebrate with us your amazing nystagmus successes.
If you’d like to help us to support everyone with nystagmus to be amazing, please text ZING18 £5 to 70070. Thank you.
Please complete the form to let us know about your amazing nystagmus success story.