How amazing is Alfie?


My son Alfie who is almost 10 has never let anything stand in his way despite now being blind in one eye and having Nystagmus. Alfie persevered in learning how to ride his bike last year and got one for his 9th Birthday. He is going to be sitting the 11+ this September because he is determined … Continue reading How amazing is Alfie?

How amazing is Ben?


Here’s an amazing story from a very proud mum. When my second son, Ben was born, from about 3 months we noticed there was something wrong with his eye movements. After nearly a year of waiting, research and MRI scans he was diagnosed with Congenital Nystagmus. We weren’t sure how this would affect him and … Continue reading How amazing is Ben?

How amazing is Freya?


I was born with nystagmus and always struggled at school both in the classroom and in PE. All throughout my education it’s been a continuous trip to the printer to enlarge text books and print outs. Things didn’t really change at college. I was told I had dyslexia which could be linked to the nystagmus, … Continue reading How amazing is Freya?

How amazing are you?


Have you done something amazing, something you never thought possible, because you have nystagmus? Has your child exceeded all your expectations? If so, we want to hear from you. Last year we heard about the fantastic swimming and fundraising achievements of Annabelle, Tyler and Poppy. This year we want to hear your stories. Between now and … Continue reading How amazing are you?