In 2019 20 Nystagmus Network supporters, their friends and family members raised £11,500 for nystagmus research by taking part in the Eye to Eye walk. We’re doing it all once … Continue reading Could you walk eye to eye for nystagmus research?
Author: Sue Ricketts
Christmas cards
Nystagmus Network Christmas cards are now on sale in our online shop. Choose from two great designs: Tis the Season to be Jolly and Let it Snow. The cards come … Continue reading Christmas cards
Farewell Richard and thank you
On Saturday 28 September the Nystagmus Network bid a very fond farewell to its Chairman of 8 years, Richard Wilson OBE Richard joined the charity as a trustee in 2008 … Continue reading Farewell Richard and thank you
Open Day 2019 – the highlights
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys … Continue reading Open Day 2019 – the highlights
Thank you and good-bye!
Thank you to everyone who made the Nystagmus Network Open Day 2019 such a success and thank you to each and everyone who said yes to Cardiff. We’ll be doing … Continue reading Thank you and good-bye!
Ben makes our world right
And finally, we welcome to the stage singer/songwriter, Ben Haynes. Ben knows only too well what it’s like growing up with nystagmus and albinism, but it hasn’t stopped him from … Continue reading Ben makes our world right
Oliver sings
Whilst everyone else has been enjoying their tea, young Oliver Mitchell has been tuning up his vocal chords and is about to welcome us back into the Millennium Lounge with … Continue reading Oliver sings
Friends!
We may not be celebrating the 25th anniversary of our friendship quite yet, but, to the tune of “I’ll be there for you” by the Rembrandts we now welcome to … Continue reading Friends!
A round up of low vision services across England and Wales
We’re hearing from our speakers this afternoon about all the services available across the UK for people living with impaired vision and those supporting someone who has a vision impairment. … Continue reading A round up of low vision services across England and Wales
Nadine is here!
We welcome Nadine Neckles, author of this year’s fabulous new book “Can I tell you about Nystagmus?”. Nadine will be telling us all about her book and her experiences of … Continue reading Nadine is here!