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Nystagmus Network

Supporting people living with nystagmus

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Author: Sue Ricketts

#YouMadeItHappen – Jac


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Jac

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Thank yousTags #YouMadeItHappen

#YouMadeItHappen – Finlay


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with … Continue reading #YouMadeItHappen – Finlay

Posted on November 19, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Thank yousTags #YouMadeItHappen

What’s on your bucket list for 2019?


Fancy a doing a sponsored sky dive for the Nystagmus Network? We’ve teamed up with UK Skydiving Adventures to offer you locations all around the country to make your leap … Continue reading What’s on your bucket list for 2019?

Posted on November 15, 2018November 15, 2018Author Sue RickettsCategories FundraisingTags bucket list, sky dives
Tim Cuddeford

Run with Tim


Nystagmus Network trustee, Tim Cuddeford, will be running the London Vitality 10k for the charity on 27 May next year. If you’d like to run with Tim, we have a … Continue reading Run with Tim

Posted on November 15, 2018Author Sue RickettsCategories FundraisingTags London Vitality 10k, sponsored run

Happy Birthday, Nye!


On 15 November we mark the birthday of Nye Bevan, the founding father of the National Health Service, which marks its own 70th birthday this year. Although it is not … Continue reading Happy Birthday, Nye!

Posted on November 15, 2018November 12, 2018Author Sue RickettsCategories Nystagmus heroesTags Aneurin Bevan, miners' nystagmus, NHS, Nye Bevan
A thank you postcard.

#YouMadeItHappen Monday 19 November


At this time of year we like to celebrate all the amazing things you, our supporters, have made happen. Thanks to you, the Nystagmus Network has spent another successful year providing support and … Continue reading #YouMadeItHappen Monday 19 November

Posted on November 14, 2018November 14, 2018Author Sue RickettsCategories Charity highlights, Thank yousTags #YouMadeItHappen
Two runners taking part in the Royal Parks Half Marathon.

Run the Royal Parks for Nystagmus Network


The 2019 Royal Parks Half Marathon will take place on Sunday, 13 October 2019. Billed as one of the country’s most picturesque routes, the run takes in some major London … Continue reading Run the Royal Parks for Nystagmus Network

Posted on November 14, 2018Author Sue RickettsCategories FundraisingTags Royal Parks Half Marathon
Dan Williams crouches beside his guide dog, Zodiac.

Seeing Beyond the Eyes


The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, … Continue reading Seeing Beyond the Eyes

Posted on November 13, 2018November 13, 2018Author Sue RickettsCategories Information and Support, Living with nystagmus, NewsTags Daniel Williams, Seeing Beyond the Eyes, Visualise Training and Consultancy

Dark City theatre event – Bristol


DARK CITY SESSIONS Are you interested in stories, theatre and creative technology? Then join PECo theatre in a monthly event to connect with others and get inspired! Working with a group … Continue reading Dark City theatre event – Bristol

Posted on November 13, 2018Author Sue RickettsCategories EventsTags Bristol, Dark City, theatre

A letter from Santa


Children with vision impairment can receive a letter from Father Christmas in their chosen format, courtesy of our friends at RNIB. Find out more, here.

Posted on November 8, 2018Author Sue RickettsCategories Information and Support, Nystagmus is ... this ChristmasTags Father Christmas, RNIB, Santa

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