Facebook – Nystagmus Network

A mature woman interacts with a number of young children.

Our Facebook group for grandparents

When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s a big step for all of you. For some it comes naturally, others might prefer to prepare for their new role. Do you play it by ear or read all the ‘good granny’ guides?

And how does nystagmus fit in to all of that?

Meet other ‘nystagmus’ grandparents, learn more about the condition and how to support your family in our brand new Facebook group for grandparents.

Join the group here

Sign up for the “Nystagmus in the Open” thunderclap!

At 12 midday on Wednesday 20 June, Nystagmus Awareness Day, we can get the whole world talking about nystagmus across Facebook and Twitter. All you need to do to take part is follow this link to sign up. Please join us to get the word nystagmus rippling out across the world.

Friday Fundraisers on Facebook

Every Friday on our Facebook page we celebrate the achievements of the week’s top fundraiser, feature the story of one of our upcoming fundraisers or signpost you to fabulous and fun fundraising opportunities. So please join us every Friday on Facebook and help us say a huge thank you to all our wonderful fundraisers.

Our fundraisers make it possible for us to continue our important work supporting everyone affected by nystagmus, providing information, raising awareness and funding research. We cannot do any of this without them.

Last week’s Friday Fundraisers were Jemma, Jo, Fergie and Jorja. Please sponsor them if you can and then go and find out about this week’s Friday Fundraiser.

Thank you!

It’s Tuesday – that’s Nystagmus Networking day on Facebook!

We call our charity the Nystagmus Network, because it’s very important to us to help people affected by nystagmus to get together for mutual support. There is no better feeling than meeting someone else who has nystagmus themselves or has a child with nystagmus.

To help members of the nystagmus community get together, this year we have declared every Tuesday nystagmus networking day on our Facebook page.

Each week we nominate areas of the UK from our big alphabetical list and encourage people to leave comments, message each other and organise meet ups. Why not come over to our page and see who you could find in your area?

Monday Focus on Facebook

Every Monday over on our Facebook page we focus on a particular nystagmus-related topic to get the week started with a great conversation.

Topics we have covered so far have included null point surgery, driving and nystagmus, talking to you child about nystagmus and whether or not to have cataracts removed when you have nystagmus.

Anyone can join in the conversation and share their thoughts, questions, experience and point of view.