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Category: Nystagmus Awareness Day

Harshal Kubavat headshot

Harshal’s nystagmus story


This year for Nystagmus Awareness Day people are sharing their personal stories to help everyone understand what it’s really like You can share your story here This is Harshal’s story … Continue reading Harshal’s nystagmus story

Posted on June 21, 2023June 21, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Eliana is sitting on the floor cuddling a black Labrador dog.

Eliana’s story


This Nystagmus Awareness Day we’re inviting people who have nystagmus or care for someone who does to share their story. You can share your story here This is Eliana’s story … Continue reading Eliana’s story

Posted on June 16, 2023June 16, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Bryony smiles, wearing a summer dress and holding a glass of wine.

Bryony’s nystagmus story


For Nystagmus Awareness Day 2022 we’re giving you the opportunity to share your story to help others understand the impact of the condition. You can share your story here This … Continue reading Bryony’s nystagmus story

Posted on June 12, 2023June 12, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Peter Greenwood

Peter’s nystagmus story


People are sharing their nystagmus stories with us this Nystagmus Awareness Day so that everyone can understand what it’s like. You can share your nystagmus story here This is Peter’s … Continue reading Peter’s nystagmus story

Posted on June 6, 2023June 6, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
A picture of Sherifa wearing a white long sleeve shirt, baby blue trousers, black large framed glasses, black curly hair and black sandals. Standing on a bridge looking towards a flowing river.

Sherifa’s nystagmus story


Sherifa has shared her nystagmus story to help raise awareness of the condition and its impact this Nystagmus Awareness Day. You can share your story here This is Sherifa’s story … Continue reading Sherifa’s nystagmus story

Posted on June 6, 2023June 6, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Vivien stands in front of a Nystagmus Network banner.

Vivien’s nystagmus story


For Nystagmus Awareness Day 2023 we’re giving you the opportunity to share your nystagmus story to help others understand the condition better. You can share your story here This is … Continue reading Vivien’s nystagmus story

Posted on June 6, 2023June 6, 2023Author Sue RickettsCategories Nystagmus Awareness DayTags nystagmus, Nystagmus Awareness Day, nystagmus network
Andy McFarlane

Andy’s nystagmus story


We;re inviting everyone to share their nystagmus story in their preferred medium this Nystagmus Awareness Day. Andy has chosen to make a video. You can share your story here This … Continue reading Andy’s nystagmus story

Posted on June 6, 2023June 6, 2023Author Sue RickettsCategories Living with nystagmus, Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
The view of a woman's face from above. Someone's hands are applying eye makeup to the seated woman.

Sue’s nystagmus story


This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sue’s story … My nystagmus story begins in 1991 when … Continue reading Sue’s nystagmus story

Posted on June 2, 2023June 2, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags nystagmus, Nystagmus Awareness Day, nystagmus network
John aged around 8 - a black and white photo.

John’s nystagmus story


This Nystagmus Awareness Day we’re asking people to share their story. You can share your story here John’s nystagmus story is a letter to his 9-year-old self To the best … Continue reading John’s nystagmus story

Posted on June 2, 2023June 2, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Nystagmus heroesTags nystagmus, Nystagmus Awareness Day, nystagmus network
Sharon Clifford

Sharon’s nystagmus story


This Nystagmus Awareness Day we’re asking you to share your story. You can share your nystagmus story here This is Sharon’s story … My nystagmus story started October 2017 when … Continue reading Sharon’s nystagmus story

Posted on June 2, 2023June 2, 2023Author Sue RickettsCategories Nystagmus Awareness Day, Parent storiesTags Hermansky-Pudlak Syndrome, Moorfields Eye Hospital, nystagmus, Nystagmus Awareness Day, nystagmus network, University of Leicester

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