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News


Stay up to date with all our latest stories and features in one place.

Read our news here

 

Marie Turnbull

Calling Manchester!


We’re about to launch our very first local nystagmus network in Manchester. Your host, Nystagmus Network trustee, Marie Turnbull, is arranging a date, time and venue for your first get … Continue reading Calling Manchester!

Posted on October 30, 2018Author Sue RickettsCategories Events, Information and Support, nystagmus networksTags Local Groups, Manchester

Could you walk from Eye to Eye for nystagmus?


At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye … Continue reading Could you walk from Eye to Eye for nystagmus?

Posted on October 29, 2018Author Sue RickettsCategories Events, FundraisingTags Eye to Eye, Moorfields Eye Hospital, nystagmus research, University College London

Christmas shopping online?


Christmas is just around the corner! When you do your online shopping through easyfundraising, you’ll be helping to raise donations for The Nystagmus Network. Please sign up and start shopping … Continue reading Christmas shopping online?

Posted on October 29, 2018Author Sue RickettsCategories FundraisingTags christmas, Easyfundraising

True dedication!


Nystagmus Network trustees Claire Brinn and Vicky Pitman and Vicky’s husband, Richard finally completed their abseil for nystagmus research on Sunday, 28 October. They scaled down the ArcelorMittal Orbit at … Continue reading True dedication!

Posted on October 29, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags abseil, Moorfields Eye Hospital, trustees, University College London

Make us smile – even more!


Thank you to everyone who’s already signed up with AmazonSmile to raise a small donation for the Nystagmus Network every time you order something from Amazon. For a short time … Continue reading Make us smile – even more!

Posted on October 29, 2018Author Sue RickettsCategories FundraisingTags AmazonSmile

Our Annual Report 2017 is published


Of interest to all of our stakeholders, subscribed members, supporters, fundraisers and donors, our Annual Report for 2017 is now published on the Charities Commission website and available to read. … Continue reading Our Annual Report 2017 is published

Posted on October 29, 2018Author Sue RickettsCategories Charity highlightsTags Annual Report 2017

They did it – at last!


The unpredictable British weather finally came good for our intrepid (postponed) abseilers on Sunday 21 September, when Clare A, Glen and Matt finally completed their abseil from the viewing platform … Continue reading They did it – at last!

Posted on October 22, 2018October 22, 2018Author Sue RickettsCategories Charity highlights, Fundraising, Thank yousTags abseil, Moorfields Eye Hospital, University College London

Congratulations, Marsha


Marsha De Cordova MP, Shadow Minister for Disabilities and MP for Battersea, features in the Shaw Trust’s Disability Power 100 2018. This is well deserved recognition for a person who … Continue reading Congratulations, Marsha

Posted on October 22, 2018Author Sue RickettsCategories Living with nystagmusTags Disability Power 100 2018, Marsha de Cordova, Open Day

Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of … Continue reading Nerves of steel!

Posted on October 17, 2018October 17, 2018Author Sue RickettsCategories Charity highlights, FundraisingTags abseil, Moorfields Eye Hospital, nystagmus research, University College London
2 runners wearing Nystagmus Network show their medals after comleting the Royal Parks Half Marathon

Clare did it for nystagmus and for Jessica


Clare ran the Royal Parks Half Marathon on Sunday 14 October to raise money for the Nystagmus Network in honour of Jessica, who was born with the condition. The Royal … Continue reading Clare did it for nystagmus and for Jessica

Posted on October 15, 2018Author Sue RickettsCategories FundraisingTags Royal Parks Half Marathon, sponsored run

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