We are delighted to announce that 16 year old Wilson is the winner of our Nystagmus Awareness Day photography competition: The View from my Window. Wilson is very pleased to have won a competition he didn’t even know he’d entered. Each evening Wilson sends home to his Mum a photograph of the view from his … Continue reading Wilson’s winning window
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we can still mark the day and raise awareness to ensure that the 1 in 1,000 adults and children living with nystagmus enjoys a greater understanding … Continue reading Nystagmus Awareness Day 20 June 20
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Jay Self (JS), a Consultant Paediatric Ophthalmologist at University of Southampton and nystagmus researcher and Helena Lee (HL), a Consultant Ophthalmologist at University of … Continue reading Your nystagmus research questions answered – question 9
We want to raise as much awareness of nystagmus as possible this year and make sure that everyone has a chance to take part, so we’re running our wobbly photography competition: The View From My Window We know that lots of people who have nystagmus are also keen photographers. Most notably, of course, is internationally acclaimed … Continue reading Our wobbly photography competition – judged by David Katz
We were so lucky to have the inspirational David Katz as our guest speaker at Open Day 2018. Not only did he deliver an amazing presentation, but he was around all day chatting with delegates and supporting Maayan with her Movement and Spirit workshop for the children. If you weren’t able to come to Open … Continue reading David’s amazing Open Day film
The day before Nystagmus Awareness Day 2018, Information and Development Manager, Sue, and trustee, Peter, travelled to London to meet a very inspirational man – internationally acclaimed ‘blind’ photographer, David Katz. Several exciting nystagmus-related projects were discussed – more of those to come. David will, of course, be the charity’s guest speaker at Open Day … Continue reading An inspiring meeting with David Katz
It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was there, sharing stories of his amazing photography career, despite having ocular albinism and nystagmus. The Outspan Rebels VI ski team were there, with their amazing … Continue reading Did you come to Snow Camp?
Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by … Continue reading Open Day tickets for members – available soon
Internationally acclaimed photographer and Nystagmus Network member, David Katz, has just returned from the assignment of a lifetime, covering the Winter Paralympics in Pyeongchang. He has put together an incredible film to showcase his experience. Meet David at our annual Open Day in Birmingham on Saturday 29 September.
We are delighted to announce that David Katz, the internationally acclaimed photographer, will be joining us as our special guest speaker at our annual Open Day on 29 September. David was with us all in spirit last year, of course, when we were honoured and privileged to have been granted permission to premier his amazing … Continue reading David Katz – our special guest speaker at Open Day 2018