We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to inform and support families through a child’s nystagmus diagnosis.
This project follows on from the 2023 publication of the “Concise Practice Point for managing nystagmus in childhood” by the Royal College of Ophthalmologists, to which we proudly contributed as the patient representative member of NUKE (the Nystagmus UK Eye research group).
The new resource will translate this expert clinical guidance into practical, easy-to-understand information for parents and carers, empowering them with knowledge and support right from the start.
Thank you, Jeans for Genes, for believing in our mission to champion the nystagmus community and ensure every family feels supported and understood.
Together, we’re making a real difference!
Read more about the 2025 Jeans for Genes grant charities here
