The front cover of the Nystagmus Network guide to nystagmus and the early years.

Nystagmus and the early years

The Nystagmus Network is proud to launch a new guide to nystagmus and the early years. Written for new parents and carers where a baby is newly diagnosed with nystagmus, this digital guide talks you through what to do, where to find help and how to support your child’s development from 0 to 5 years.

Nystagmus and the Early Years is the latest in a whole range of information guides for parents and carers, all available to download for free from our website in PDF and Word doc format. Plain text print versions are available on request to [email protected]

Reviewing the new guide, Nystagmus Network trustee and chair of the charity’s Support Committee, Kathryn Swanston, said: “Congratulations on another excellent resource. Well done to all involved in putting this together. The addition of the parent’s perspective is great.”

Download your copy of the new early years guide here


Have you been on a bear hunt yet?

A great way to make your time outdoors fun with the children is to go on a bear hunt.

Inspired by the lovely Michael Rosen’s fabulous book “We’re going on a bear hunt” people all over the world are placing teddy bears in their windows so that children can spot them when they’re out walking with their families.

Nystagmus Network’s Sue says: This was one of my children’s favourite books when they were little. We never tired of it. Even today I sometimes tell my dogs we’re going on a bear hunt, but they haven’t caught any yet!”

The Nystagmus Network mascot (pictured) caught a very big one (also pictured) when he went on his bear hunt earlier today.

Michael Rosen is currently unwell. We wish him a very speedy recovery.

Here’s Michael performing the story. Enjoy!