Vivien with her guests at the Ruby Year celebration at the House of Lords in November 2024.

A New Year honour for Vivien, founder of the Nystagmus Network


We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network

Two knitted nystagmus mascots wearing silver grey and purple clothes to mark the Platinum Jubilee, stand in a garden.

Join us for the big lunch


As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join … Continue reading Join us for the big lunch